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Calendar of Events

NF Community Chat – September

Zoom

September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!

Maine Marathon, Half Marathon, and Relay

Pedro Field 55 Baxter Boulevard, Portland, ME, United States

Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along […]

Treatment Landscape in NF1-Plexiform Neurofibromas

Zoom

October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.

NF Community Chat – October

Zoom

October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

Newburyport Half Marathon, Relay, 5K

Cashman Park Sally Snyder Way, Newburyport, Massachusetts

Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic […]

Cambridge Half Marathon

CambridgeSide Galleria 100 Cambridgeside Pl, Cambridge, Massachusetts

Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers […]

Committed to Curing NF 2025

The Great American Beer Hall 142 Mystic Avenue, Medford, United States

November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!

Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community

Saratoga Senior Center 290 West Avenue Suite 1, Saratoga Springs, NY, United States

November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.