NF Northeast is the organization that helps patients through their Journey of Hope.
A diagnosis of NF1, NF2-related schwannomatosis, or schwannomatosis can happen to anyone at any age and at any time.
Our Vision: A world where the burden of neurofibromatosis does not exist.
Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders.
NF Northeast is a highly regarded resource for patients, physicians and scientists. We have provided over $3 million in research grants, and through our advocacy, have been pivotal in generating over $600 million in federally funded NF research. We are known as the “organization with the heart” because ours is a strong and caring community that provides support to newly diagnosed patients and their families.
Ride the Scottish Highlands for NF Northeast! Take on an unforgettable cycling adventure at the Etape Loch Ness on Sunday, April 25, 2027! This popular cycling event takes riders on
February 8th – Join us for the 12th annual Cupid’s Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
Join Team NF Northeast for the Cambridge 5K & Half Marathon and turn your miles into meaningful support for individuals and families affected by neurofibromatosis (NF). Whether you’re an experienced
NF Northeast is proud to announce the expansion of our services to the state of Delaware — bringing education, patient advocacy, financial resource guidance, community support, and research funding to
We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion,
Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast
