2024 Fall Golf Classic
September 16th – Join us for a lovely day on the links! This relaxing day of golf includes light breakfast, cart/greens fees, giveaways, and an early dinner accompanied by awards, raffles, and a silent auction.
NF Northeast is the organization that helps patients through their Journey of Hope.
A diagnosis of NF1, NF2-related schwannomatosis, or schwannomatosis can happen to anyone at any age and at any time.
Our Vision: A world where the burden of neurofibromatosis does not exist.
Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders.
What is NF?
Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, all ethnic groups and both sexes equally. NF affects more people worldwide than cystic fibrosis and muscular dystrophy combined!
Who We Are
NF Northeast is a highly regarded resource for patients, physicians and scientists. We have provided over $3 million in research grants, and through our advocacy, have been pivotal in generating over $600 million in federally funded NF research. We are known as the “organization with the heart” because ours is a strong and caring community that provides support to newly diagnosed patients and their families.
For Patients & Families
Being faced with a diagnosis of NF can be extremely overwhelming. NF Northeast has created programs and resources to help patients and families cope with the challenges that come with NF. Our approach is simple: Science, Solutions, Support. We hope that you will find comfort in knowing that NF Northeast is with you every step of the way.
For Researchers
NF Northeast is committed to advancing biomedical research in fields relevant to neurofibromatosis and has been funding research proposals since 1990. To date, we have granted close to $3,000,000 to fund proposals from researchers or institutions both within and outside of the northeast United States. Fields of research include basic science, translational, and applied clinical trials.
How to Get Involved
There are a number of ways to support the patients, families, researchers and others looking to fulfill our mission of hope and progress. Donations; community networks; fundraising campaigns; third-party events; creating awareness; community outreach and many more.
News & Events
NF Northeast is involved with numerous events every year involving hundreds of volunteers, families, organizational sponsors, and other supporters. We raise awareness, provide opportunities for positive action and raise funds that support our many goals, programs and research. In addition, we strive to let you know about important news and progress that give hope to our entire community.
Upcoming Events
Young Adult Empowerment Series – Session #1
September 16th – Join us for this session focused on social anxiety and tools you can use when connecting with other young adults!
Tuesday Takeaways Session #2 with Dr. Rukin Gold and Dr. SantaCruz
September 17th – Dr. Rukin Gold and Dr. SantaCruz from the Dartmouth Hitchcock Medical Center NF Clinic will be speaking about NF and discussing new resources and opportunities for patients living in the New England/New Hampshire area.
Latest News
Young Adult Empowerment Series
A three-part empowerment series for young adults in the neurofibromatosis community led by Jeffrey Malone (Licensed Mental Health Counselor) and Anne Patterson (Director of Patient and Clinic Outreach at NF Northeast).
Bert Peluso Research Fund
NF Northeast and the Peluso family together established the Bert Peluso Research Fund Award in loving memory of Bert Peluso and the incredible impact he had on the lives of those across the neurofibromatosis community.
NF Newsletter
Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!