NF Northeast is the organization that helps patients through their Journey of Hope.
A diagnosis of NF1, NF2-related schwannomatosis, or schwannomatosis can happen to anyone at any age and at any time.
Our Vision: A world where the burden of neurofibromatosis does not exist.
Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders.
NF Northeast is a highly regarded resource for patients, physicians and scientists. We have provided over $3 million in research grants, and through our advocacy, have been pivotal in generating over $600 million in federally funded NF research. We are known as the “organization with the heart” because ours is a strong and caring community that provides support to newly diagnosed patients and their families.
Join Team NF Northeast for the Cambridge 5K & Half Marathon and turn your miles into meaningful support for individuals and families affected by neurofibromatosis (NF). Whether you’re an experienced
September 19th – Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
August 16th – Offering limited bibs to run with NF Northeast for the 2026 Falmouth Road Race!
NF Northeast is proud to announce the expansion of our services to the state of Delaware — bringing education, patient advocacy, financial resource guidance, community support, and research funding to
NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday, August 16, 2026. In order to
NF Northeast is excited to present our NF1 Community Education Series, sponsored by Alexion! Join us for two free virtual programs created for individuals and families affected by NF1.
