NF Northeast is proud to announce the expansion of our services to the state of Delaware — bringing education, patient advocacy, financial resource guidance, community support, and research funding to
NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday, August 16, 2026. In order to
NF Northeast is excited to present our NF1 Community Education Series, sponsored by Alexion! Join us for two free virtual programs created for individuals and families affected by NF1.
NF patients and their families and friends are invited to join us the morning of Saturday, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are
September 19th – Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Join us for an overview of the STARFISH Clinical Trial for pain relief in non-NF2 related schwannomatosis, presented by Scott Plotkin, MD, and Vanessa Merker, PhD. Thursday, September 10 at 6:00 PM ET. Free and virtual.
September 14th – Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, and an early dinner accompanied by awards, raffles, and a silent auction.
Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates
NF patients and their families and friends are invited to join us the evening of Tuesday, October 6th at 7:00 PM for a community-building virtual chat! These are fantastic opportunities
NF Northeast invites you to join our Career Readiness program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Kristen Clark, this free
