We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion,
Join us for our Tuesday Takeaways, a one-hour educational lunchtime session, geared towards sharing relevant updates and educational materials with our NF community. These one-hour educational lunchtime sessions are geared
January 22nd – NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and
We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!
February 8th – Join us for the 12th annual Cupid’s Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
February 14th – NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!
December 18th – NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!
March 3rd – NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
April 18th – NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!
