NF Coffee Chat – February
February 14th – NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!
News & Events
Koselugo Approved in the US For Adults with NF1
We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion,
Steps2Cure NF Event Series 2026
We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!
NF Holiday Community Chat – December
December 18th – NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!
NF Community Chat – March
March 3rd – NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
Stronger Together in Schwannomatosis
NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and
Recognizing Dr. Kaleb Yohay with the NF Compassion in Action Care Award
On October 23rd in New York City, members of the NF Board of Directors proudly presented Dr. Kaleb Yohay with the NF Compassion in Action Care Award. This honor celebrates his
Congratulations to Our Latest NF Researcher!
Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast
Steps2Cure NF – Rhode Island
May 9th – Steps2Cure NF Rhode Island is a fundraising walk around the coastal scenery of Colt State Park in Bristol, RI.
Steps2Cure NF – Lebanon, NH
May 30th – Steps2Cure NF Lebanon, NH is a fundraising walk through the scenic campus of the Dartmouth Hitchcock Medical Center.
