NF Community Chat – May
May 11th – NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
News & Events
Steps2Cure NF – Central New York
May 9th – Steps2Cure NF Central New York is a fundraising walk around the scenic Forest Park in Camden, NY.
NF Community Chat – November
November 15th – NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
Tuesday Takeaways with Devorah Segal: Updates and Care Management – NF1 Plexiform Neurofibromas (NF1-PN)
November 4th – Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
NF Newsletter
Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!
Treatment Landscape in NF1-Plexiform Neurofibromas
October 16th – Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
Committed to Curing NF 2025
November 7th – The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
NF Northeast Fall Hike for NF: Never Stop Climbing – Mount Agamenticus
Unfortunately, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. Thank you to everyone who showed interest and helped spread the word. We’re already planning more community
NF Community Chat – October
October 21st – NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
NF Community Chat – September
September 20th – NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
