NF Community Chat – March
March 3rd – NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
News & Events
Stronger Together in Schwannomatosis
NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and
Congratulations to Our Latest NF Researcher!
Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast
Steps2Cure NF – Rhode Island
May 9th – Steps2Cure NF Rhode Island is a fundraising walk around the coastal scenery of Colt State Park in Bristol, RI.
Steps2Cure NF – Greater Philadelphia
May 3rd – Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.
NF Northeast at the Buffalo Marathon Weekend
Run (or Walk) for a Purpose – Buffalo Marathon Weekend May 23–24, 2026 | Buffalo, NY Join NF Northeast for a weekend of running, walking, and community at the Buffalo
Steps2Cure NF – Erie, PA
May 17th – Steps2Cure NF Erie is a fundraising walk around UPMC Park.
Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a
Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101
Steps2Cure NF – Greater Boston
May 17th – Steps2Cure NF Greater Boston is a fundraising walk around the beautiful and scenic Lake Quannapowitt in Wakefield, MA.
