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Calendar of Events

Tuesday Takeaways Session #1 with Mike Sager

Zoom

August 6th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies on how to support those we care for and discussing the importance of personal self-care along the way.

ASICS Falmouth Road Race 2024

Woods Hole, MA Woods Hole, MA, United States

August 18th - Offering limited bibs to run with NF Northeast for the 2024 Falmouth Road Race!

13th Annual Coast to the Cure

Stage Fort Park in Gloucester, MA 24 Hough Ave, Gloucester, MA, United States

September 7th - NF Northeast is excited to announce our 13th Annual Coast to the Cure ride to benefit NF Northeast! Participants have the option to choose from 24, 40, or 66 mile courses that take them along the picturesque coast of Boston’s North Shore.

2024 Fall Golf Classic

Four Oaks Country Club 1 Clubhouse Ln, Dracut, MA, United States

September 16th - Join us for a lovely day on the links! This relaxing day of golf includes light breakfast, cart/greens fees, giveaways, and an early dinner accompanied by awards, raffles, and a silent auction.

2024 Amica Newport Marathon

Easton's Beach 175 Memorial Blvd, Newport, RI, United States

October 13th - NF Northeast is offering a limited number of bibs for the 2024 Amica Newport Marathon—full and half marathon available! Run this lovely fall course featuring stunning views and a beachside finish.

Tuesday Takeaways Session #3 with Amanda Bergner

Zoom

October 15th - NF/SWN expert and genetic counselor, Amanda Bergner, will discuss various aspects of family planning across the lifespan for people with NF/schwannomatosis and their loved ones.

A Reason for ‘Ritas: A Celebration of NF Northeast at Margaritaville

Margaritaville Boston 399-400 Faneuil Hall Marketplace, Faneuil Hall Sq, Boston, MA, United States

October 19th - Join us for an unforgettable tropical evening at Margaritaville Boston with appetizers, live music from the Baha Brothers, raffles, and plenty of margaritas!

Committed to Curing NF

Anthony’s of Malden 105 Canal St, Malden, MA, United States

November 9th - The Malerba family invites you to join them at Anthony’s of Malden from 6pm to 11pm for a fun-filled fundraising evening that features delicious food, great music, exciting raffles, casino tables, and more!