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Today

  • NF Community Chat – October

    Zoom

    October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

  • Canceled NF Northeast Fall Hike for NF: Never Stop Climbing – Mount Agamenticus

    Mount Agamenticus York, Maine

    Unfortunately, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. Thank you to everyone who showed interest and helped spread the word. We’re already planning more community events and hope you’ll join us next time! 💙🌲

  • Newburyport Half Marathon, Relay, 5K

    Cashman Park Sally Snyder Way, Newburyport, Massachusetts

    Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic Newburyport, MA, offers a beautiful course and the chance to support NF Northeast. Whether you're running solo in the Half Marathon or 5K, or teaming […]

  • Cambridge Half Marathon

    CambridgeSide Galleria 100 Cambridgeside Pl, Cambridge, Massachusetts

    Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers a fast, exciting course—and a chance to make a real impact. By joining Team NF Northeast, you’re not just running; you’re helping to raise critical […]

  • Committed to Curing NF 2025

    The Great American Beer Hall 142 Mystic Avenue, Medford, United States

    November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!

  • Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community

    Saratoga Senior Center 290 West Avenue Suite 1, Saratoga Springs, NY, United States

    November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.

  • Manchester City Marathon, Half Marathon, Relay and 5K

    Veterans Park 799 Elm St, Manchester, New Hampshire

    Run the Manchester City Marathon, Half Marathon, Relay & 5K for NF Northeast! Join us for the Manchester City Marathon, Half Marathon, Relay, or 5K, and turn your race into a powerful way to support those affected by neurofibromatosis (NF). Whether you’re going the full 26.2 miles, running a Half Marathon, teaming up for the […]

  • NF Community Chat – November

    Zoom

    November 15th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!

  • Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies

    Zoom

    Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]