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  • Boston’s Run to Remember

    Seaport Boston Seaport Blvd, Boston, Massachusetts

    Run Boston’s Run to Remember for NF Northeast! Take on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter. This inspiring race honors fallen first responders while giving you the chance to support NF Northeast. Whether you’re running 5 miles or going the full 13.1, you can be part of […]

  • Steps2Cure NF – Lebanon, NH

    Dartmouth Hitchcock Medical Center One Medical Center Drive, Lebanon, NH

    May 30th - Steps2Cure NF Lebanon, NH is a fundraising walk through the scenic campus of the Dartmouth Hitchcock Medical Center.

  • Steps2Cure NF – Western New York

    Buffalo RiverWorks 359 Ganson Street, Buffalo, NY, United States

    May 31st - Steps2Cure NF Western New York is a fundraising walk around the downtown Buffalo RiverWorks venue.

  • Steps2Cure NF – Capital District New York

    Central Park 500 Iroquois Path, Schenectady, NY, United States

    May 31st - Steps2Cure NF Capital District New York is a fundraising walk through the scenic Central Park in Schenectady, NY.

  • NF Coffee Chat – June

    Zoom

    Join us Saturday, June 6th at 9:00 AM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!

  • NF Coffee Chat – July

    Zoom

    Join us Tuesday, July 7th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!

  • NF1 Community Education Series: Back to School

    Zoom

    NF Northeast invites you to join our Back to School program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Mike Sager, this free virtual session covers how to navigate the new school year for those affected by rare disease, including how to collaborate with schools and avoid […]

  • Pain in Schwannomatosis (SWN) – A Holistic Approach to Pain Care

    Zoom

    Join us for a discussion with Dr. Rebecca Brown, Director of the UAB NF Clinic, and Dr. Brian Mayrsohn, Founder of Maywell Pain Management. They'll explore a holistic, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). Monday, August 10, 2026 6:30 PM to 8:30 PM EST Virtual Event (Zoom) Register Here

  • NF Coffee Chat – August

    Zoom

    Join us Tuesday, August 11th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!