Island Vines 10K & 5K
Run the Island Vines 10K, 5K & Kids Fun Run for NF Northeast! Start your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero, VT, […]
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NF Community Chat – September
September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
Tuesday Takeaways with Carey Pink: Music Therapy and Neurofibromatosis (NF)
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Maine Marathon, Half Marathon, and Relay
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along […]
Treatment Landscape in NF1-Plexiform Neurofibromas
October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
NF Community Chat – October
October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Canceled NF Northeast Fall Hike for NF: Never Stop Climbing – Mount Agamenticus
Unfortunately, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. Thank you to everyone who showed interest and helped spread the word. We’re already planning more community […]
Newburyport Half Marathon, Relay, 5K
Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic […]
Cambridge Half Marathon
Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers […]
Tuesday Takeaways with Devorah Segal: Updates and Care Management – NF1 Plexiform Neurofibromas (NF1-PN)
November 4th - Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
