NF Community Chat – May
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Run Bostonās Run to Remember for NF Northeast! Take on the Bostonās Run to Remember Half Marathon or 5-Miler and make your miles matter! This inspiring race honors fallen first […]
Run the Vermont City Marathon & Relay for NF Northeast! Join us for the Vermont City Marathon & Relay and run for a cause! Whether you're tackling the full 26.2 […]
June 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
July 15th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 12th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will describe tips to facilitate productive conversations you can use at upcoming medical appointments.
August 14th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 17th - Offering limited bibs to run with NF Northeast for the 2025 Falmouth Road Race!
September 6th - Join us for our 14th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purposeāraising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.