NF Northeast invites you to join our Back to School program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Mike Sager, this free virtual session covers how to navigate the new school year for those affected by rare disease, including how to collaborate with schools and avoid […]
Join us for a discussion with Dr. Rebecca Brown, Director of the UAB NF Clinic, and Dr. Brian Mayrsohn, Founder of Maywell Pain Management. They'll explore a holistic, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). Monday, August 10, 2026 6:30 PM to 8:30 PM EST Virtual Event (Zoom) Register Here
Join us Tuesday, August 11th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!
August 16th - Offering limited bibs to run with NF Northeast for the 2026 Falmouth Road Race!
Join us for an overview of the STARFISH Clinical Trial for pain relief in non-NF2 related schwannomatosis, presented by Scott Plotkin, MD, and Vanessa Merker, PhD. Thursday, September 10 at 6:00 PM ET. Free and virtual.
NF patients and their families and friends are invited to join us the morning of Saturday, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope […]
September 14th - Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, and an early dinner accompanied by awards, raffles, and a silent auction.
September 19th - Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 4, 2026, in Portland, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. Limited bibs […]
NF patients and their families and friends are invited to join us the evening of Tuesday, October 6th at 7:00 PM for a community-building virtual chat! These are fantastic opportunities to connect with others affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join […]
NF Northeast invites you to join our Career Readiness program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Kristen Clark, this free virtual session covers resume writing, interview preparation, and job search essentials, including dos and don'ts and advice for navigating common interview questions. Wednesday, October 14th […]
