• Pain in Schwannomatosis (SWN) – A Holistic Approach to Pain Care

    Zoom

    Join us for a discussion with Dr. Rebecca Brown, Director of the UAB NF Clinic, and Dr. Brian Mayrsohn, Founder of Maywell Pain Management. They'll explore a holistic, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). Monday, August 10, 2026 6:30 PM to 8:30 PM EST Virtual Event (Zoom) Register Here

  • The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis

    Thursday, September 106:00 PM ET Join NF Northeast for an educational presentation on The STARFISH Clinical Trial for Pain Relief in Non-NF2 Related Schwannomatosis, presented by Scott Plotkin, MD, and Vanessa Merker, PhD. This program will provide an overview of the STARFISH clinical trial, including its goals and the latest information on research focused on […]

  • Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners

    Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE