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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20260810T183000
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UID:4536-1786386600-1786393800@www.nfnortheast.org
SUMMARY:Pain in Schwannomatosis (SWN) - A Holistic Approach to Pain Care
DESCRIPTION:Join us for a discussion with Dr. Rebecca Brown\, Director of the UAB NF Clinic\, and Dr. Brian Mayrsohn\, Founder of Maywell Pain Management. They’ll explore a holistic\, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). \nMonday\, August 10\, 2026 \n6:30 PM to 8:30 PM EST \nVirtual Event (Zoom) \nRegister Here
URL:https://www.nfnortheast.org/event/pain-in-schwannomatosis-swn-a-holistic-approach-to-pain-care/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
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DTSTART;TZID=America/New_York:20260910T180000
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UID:4557-1789063200-1789066800@www.nfnortheast.org
SUMMARY:The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis
DESCRIPTION:Thursday\, September 106:00 PM ET \nJoin NF Northeast for an educational presentation on The STARFISH Clinical Trial for Pain Relief in Non-NF2 Related Schwannomatosis\, presented by Scott Plotkin\, MD\, and Vanessa Merker\, PhD. \nThis program will provide an overview of the STARFISH clinical trial\, including its goals and the latest information on research focused on pain relief for individuals with non-NF2 related schwannomatosis. \nMore information\, including registration details\, will be available soon. \nWe look forward to sharing additional updates in the coming weeks. Please check back for more information.
URL:https://www.nfnortheast.org/event/the-starfish-clinical-trial-for-pain-relief-in-non-nf2-related-schwannomatosis/
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
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DTSTART;TZID=America/New_York:20260926T083000
DTEND;TZID=America/New_York:20260926T160000
DTSTAMP:20260708T181739Z
CREATED:20260502T184315Z
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UID:4464-1790411400-1790438400@www.nfnortheast.org
SUMMARY:Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners
DESCRIPTION:Mark your calendars! Beyond Sound 2026 is an empowering\, in-person NF2 workshop\, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. \nREGISTER HERE 
URL:https://www.nfnortheast.org/event/beyond-sound-2026-a-day-for-nf2-swn-patients-care-partners/
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/BEYOND-SOUND-2026-SAVE-THE-DATE-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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