September 19th - Dr. David Miller and Katherine Piculell, Research Coordinator, from Boston Children’s Hospital will discuss their study on tumor early detection in NF1 patients.
October 17th - Dr. Rebecca Brown—Assistant Professor in the Department of Neurology at Mount Sinai Hospital—will dissect the evidence (or lack thereof) for how hormones affect tumors in NF1.
November 14th - Leah and Dasher Manth will be answering questions and discussing the benefits that a service dog can provide for patients and families affected by neurofibromatosis.
December 12th - Dr. Janusz will speak to the various ways family relationships can be affected by having a loved one with neurofibromatosis.
February 27th - Licensed Mental Health Counselor Jeffrey Malone will discuss identifying and coping with common mental health symptoms often experienced by those living with NF.
March 26th - Dr. Gary Brenner—Director of the Pain Medicine Fellowship at MGH—will discuss his research into developing novel therapies for the treatment of schwannomas.
April 30th - Robyn Fatseas, Complex Child Development Specialist, will share creative and thoughtful solutions for initiating a desired behavior change in your child.
May 28th - Anne Patterson & Sharon Klein will host an information session on trusted NF clinics around the northeast! Featuring guest speakers from select clinics to highlight their clinic/team.
August 6th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies on how to support those we care for and discussing the importance of personal self-care along the way.
September 17th - Dr. Rukin Gold and Dr. SantaCruz from the Dartmouth Hitchcock Medical Center NF Clinic will be speaking about NF and discussing new resources and opportunities for patients living in the New England/New Hampshire area.
October 8th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
October 15th - NF/SWN expert and genetic counselor, Amanda Bergner, will discuss various aspects of family planning across the lifespan for people with NF/schwannomatosis and their loved ones.
