• Stronger Together in Schwannomatosis

    Zoom

    NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and understanding in-depth genetics for individuals living with schwannomatosis. Join us for one or all of these engaging discussions. Session 1: Tuesday, January 27th, 6:30-8:00 pm EST […]

  • Journey in Focus: A Retreat for Patients with NF1

    March 28th – Join us for Journey in Focus, a one‑day retreat in Malvern, PA designed for individuals and families affected by NF1. Connect with experts, gain practical tools, and take part in meaningful conversations that support every stage of the NF1 journey.