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Join us for an overview of the STARFISH Clinical Trial for pain relief in non-NF2 related schwannomatosis, presented by Scott Plotkin, MD, and Vanessa Merker, PhD. Thursday, September 10 at 6:00 PM ET. Free and virtual.
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Events
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NF patients and their families and friends are invited to join us the morning of Saturday, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope […] |
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September 14th - Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, and an early dinner accompanied by awards, raffles, and a silent auction. |
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September 19th - Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. |
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Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE |
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