September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along […]
October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Unfortunately, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. Thank you to everyone who showed interest and helped spread the word. We’re already planning more community […]
Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic […]
Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers […]
November 4th - Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.
