NF Community Chat – April
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
10 events found.
2025 Patient and Family Neurofibromatosis and Schwannomatosis Symposium
May 10th - Patient and Family Neurofibromatosis & Schwannomatosis Symposium in Boston, MA. This event will feature expert discussions, the latest research updates, and resources for patients and families affected by neurofibromatosis and schwannomatosis.
A Reason for ‘Ritas: A Charitable Evening to Benefit NF Northeast
May 14th - Join us to celebrate NF Northeast with good food, better drinks, and the best people at Margaritaville Boston on Wednesday, May 14!
Tuesday Takeaways Session: Spotlight on NF Clinics in the Northeast
May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.
NF Community Chat – May
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Boston’s Run to Remember
Run Boston’s Run to Remember for NF Northeast! Take on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter! This inspiring race honors fallen first […]
Vermont City Marathon and Relay
Run the Vermont City Marathon & Relay for NF Northeast! Join us for the Vermont City Marathon & Relay and run for a cause! Whether you're tackling the full 26.2 […]
NF Community Chat – June
June 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Tuesday Takeaways Session with Mike Sager: Transitioning to Early Adulthood
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
NF Community Coffee Chat – July
July 15th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
