NYC NF Meet Up
March 22nd - Join NF Northeast in NYC for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Clinton Hall.
10 events found.
Support and Tools for NF1 Caregivers
March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.
Neurofibromatosis Educational Symposium
Join us for the Neurofibromatosis Educational Symposium on Saturday, April 5th, from 10:00 AM to 2:00 PM in Buffalo, NY. Hosted by John R. Oishei Children’s Hospital, Roswell Park Cancer […]
Tuesday Takeaways Session with Mike Sager: Advocating for Your Child
April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
NF Community Chat – April
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
2025 Patient and Family Neurofibromatosis and Schwannomatosis Symposium
May 10th - Patient and Family Neurofibromatosis & Schwannomatosis Symposium in Boston, MA. This event will feature expert discussions, the latest research updates, and resources for patients and families affected by neurofibromatosis and schwannomatosis.
A Reason for ‘Ritas: A Charitable Evening to Benefit NF Northeast
May 14th - Join us to celebrate NF Northeast with good food, better drinks, and the best people at Margaritaville Boston on Wednesday, May 14!
Tuesday Takeaways Session: Spotlight on NF Clinics in the Northeast
May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.
NF Community Chat – May
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Boston’s Run to Remember
Run Boston’s Run to Remember for NF Northeast! Take on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter! This inspiring race honors fallen first […]
