May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Run Boston’s Run to Remember for NF Northeast! Take on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter! This inspiring race honors fallen first responders while giving you the chance to support NF Northeast. Whether you’re running 5 miles or going the full 13.1, you can raise awareness and […]
Run the Vermont City Marathon & Relay for NF Northeast! Join us for the Vermont City Marathon & Relay and run for a cause! Whether you're tackling the full 26.2 miles or teaming up for the relay, you can make every step count by supporting NF Northeast. By running with us, you'll help raise awareness […]
June 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
July 15th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 12th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will describe tips to facilitate productive conversations you can use at upcoming medical appointments.
August 14th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 17th - Offering limited bibs to run with NF Northeast for the 2025 Falmouth Road Race!
September 6th - Join us for our 14th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Run the Island Vines 10K, 5K & Kids Fun Run for NF Northeast! Start your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero, VT, in the Island Vines 10K & 5K! Whether you're running the 10K, 5K, or the half-mile Kids Fun Run, you can make every step count […]
