NF Community Chat – September
September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
12 events found.
Tuesday Takeaways with Carey Pink: Music Therapy and Neurofibromatosis (NF)
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Maine Marathon, Half Marathon, and Relay
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. Limited bibs […]
Treatment Landscape in NF1-Plexiform Neurofibromas
October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
NF Community Chat – October
October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Canceled NF Northeast Fall Hike for NF: Never Stop Climbing – Mount Agamenticus
Unfortunately, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. Thank you to everyone who showed interest and helped spread the word. We’re already planning more community events and hope you’ll join us next time! 💙🌲
Newburyport Half Marathon, Relay, 5K
Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic Newburyport, MA, offers a beautiful course and the chance to support NF Northeast. Whether you're running solo in the Half Marathon or 5K, or teaming […]
Cambridge Half Marathon
Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers a fast, exciting course—and a chance to make a real impact. By joining Team NF Northeast, you’re not just running; you’re helping to raise critical […]
Tuesday Takeaways with Devorah Segal: Updates and Care Management – NF1 Plexiform Neurofibromas (NF1-PN)
November 4th - Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
Committed to Curing NF 2025
November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community
November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.
Manchester City Marathon, Half Marathon, Relay and 5K
Run the Manchester City Marathon, Half Marathon, Relay & 5K for NF Northeast! Join us for the Manchester City Marathon, Half Marathon, Relay, or 5K, and turn your race into a powerful way to support those affected by neurofibromatosis (NF). Whether you’re going the full 26.2 miles, running a Half Marathon, teaming up for the […]