NF Community Chat – November
November 15th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
12 events found.
Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]
Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh, who will discuss developmental, cognitive, and social-emotional challenges […]
NF Holiday Community Chat – December
December 18th - NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!
Tuesday Takeaways: NF Collective Highlights
Join us for our Tuesday Takeaways, a one-hour educational lunchtime session, geared towards sharing relevant updates and educational materials with our NF community. These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you familiar with the NF Collective? Join us to learn more about this […]
NF Community Chat – January
January 22nd - NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
NF Coffee Chat – February
February 14th - NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!
13th Annual Cupid’s Chase 5K
February 8th - Join us for the 12th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
Family Bowling Event – Connecticut
February 22, 2026 - We’re thrilled to bring the Hartford area NF Northeast community together for a night of strikes, spares, and connection! Meet other families and enjoy some fun in a relaxed, welcoming environment.
NF Community Chat – March
March 3rd - NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
NF Summer Camps Information Session
March 5th - Join us to learn more about upcoming summer camp programs for our NF community with Double H Ranch, The Woodlands Camp, and more.
Stronger Together in Schwannomatosis
NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and understanding in-depth genetics for individuals living with schwannomatosis. Join us for one or all of these engaging discussions. Session 1: Tuesday, January 27th, 6:30-8:00 pm EST […]