March 11th - Dr. Frank Buono, a Research Scientist and Lecturer at the Yale School of Medicine, will discuss pain associated with living with NF and strategies to help individuals navigate their pain management.
March 11th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
March 13th - Join us to learn more about upcoming summer camp programs for our NF community with Double H Ranch, The Woodlands Camp, and The Hole in the Wall Gang Camp!
March 22nd - Join NF Northeast in NYC for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Clinton Hall.
March 28th - We’re thrilled to bring the Boston area NF Northeast community together for a night of strikes, spares, and connection! Meet other families and enjoy some fun in a relaxed, welcoming environment.
March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.
Join us for the Neurofibromatosis Educational Symposium on Saturday, April 5th, from 10:00 AM to 2:00 PM in Buffalo, NY. Hosted by John R. Oishei Children’s Hospital, Roswell Park Cancer […]
April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
May 3rd - Steps2Cure NF Northern New Jersey is a lovely walk around Overpeck Park in Ridgefield Park, NJ—in close proximity to public transportation to/from New York City!
