NF Community Coffee Chat – July
July 15th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
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Tuesday Takeaways with Mike Sager: Productive Conversations with Healthcare Providers
August 12th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will describe tips to facilitate productive conversations you can use at upcoming medical appointments.
NF Community Chat – August
August 14th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
ASICS Falmouth Road Race 2025
August 17th - Offering limited bibs to run with NF Northeast for the 2025 Falmouth Road Race!
Coast to the Cure 2025
September 6th - Join us for our 14th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Island Vines 10K & 5K
Run the Island Vines 10K, 5K & Kids Fun Run for NF Northeast! Start your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero, VT, […]
NF Community Chat – September
September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
Tuesday Takeaways with Carey Pink: Music Therapy and Neurofibromatosis (NF)
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Maine Marathon, Half Marathon, and Relay
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along […]
Treatment Landscape in NF1-Plexiform Neurofibromas
October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
