NF Coffee Chat – June
Join us Saturday, June 6th at 9:00 AM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!
12 events found.
NF Coffee Chat – July
Join us Tuesday, July 7th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!
Stronger Together in Schwannomatosis: Restorative Sound Meditation with Gabrielle Saunders
A restorative virtual sound meditation with Gabrielle Saunders, using crystal alchemy bowls to quiet the mind and ease stress. No experience necessary — come as you are.
NF1 Community Education Series: Back to School
NF Northeast invites you to join our Back to School program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Mike Sager, this free virtual session covers how to navigate the new school year for those affected by rare disease, including how to collaborate with schools and avoid […]
Pain in Schwannomatosis (SWN) – A Holistic Approach to Pain Care
Join us for a discussion with Dr. Rebecca Brown, Director of the UAB NF Clinic, and Dr. Brian Mayrsohn, Founder of Maywell Pain Management. They'll explore a holistic, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). Monday, August 10, 2026 6:30 PM to 8:30 PM EST Virtual Event (Zoom) Register Here
NF Coffee Chat – August
Join us Tuesday, August 11th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!
ASICS Falmouth Road Race 2026
August 16th - Offering limited bibs to run with NF Northeast for the 2026 Falmouth Road Race!
The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis
Join us for an overview of the STARFISH Clinical Trial for pain relief in non-NF2 related schwannomatosis, presented by Scott Plotkin, MD, and Vanessa Merker, PhD. Thursday, September 10 at 6:00 PM ET. Free and virtual.
NF Coffee Chat – September
NF patients and their families and friends are invited to join us the morning of Saturday, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope […]
2026 Fall Golf Classic
September 14th - Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, and an early dinner accompanied by awards, raffles, and a silent auction.
Coast to the Cure 2026
September 19th - Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners
Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE