April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
May 10th - Patient and Family Neurofibromatosis & Schwannomatosis Symposium in Boston, MA. This event will feature expert discussions, the latest research updates, and resources for patients and families affected by neurofibromatosis and schwannomatosis.
May 14th - Join us to celebrate NF Northeast with good food, better drinks, and the best people at Margaritaville Boston on Wednesday, May 14!
May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Run Boston’s Run to Remember for NF Northeast! Take on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter! This inspiring race honors fallen first responders while giving you the chance to support NF Northeast. Whether you’re running 5 miles or going the full 13.1, you can raise awareness and […]
Run the Vermont City Marathon & Relay for NF Northeast! Join us for the Vermont City Marathon & Relay and run for a cause! Whether you're tackling the full 26.2 miles or teaming up for the relay, you can make every step count by supporting NF Northeast. By running with us, you'll help raise awareness […]
June 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
