Western NY NF Meet Up
March 9th - Join NF Northeast in Buffalo, NY for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Resurgence Brewery.
March 9th - Join NF Northeast in Buffalo, NY for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Resurgence Brewery.
March 11th - Dr. Frank Buono, a Research Scientist and Lecturer at the Yale School of Medicine, will discuss pain associated with living with NF and strategies to help individuals navigate their pain management.
March 11th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
March 22nd - Join NF Northeast in NYC for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Clinton Hall.
March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.
Join us for the Neurofibromatosis Educational Symposium on Saturday, April 5th, from 10:00 AM to 2:00 PM in Buffalo, NY. Hosted by John R. Oishei Children’s Hospital, Roswell Park Cancer Institute, and UBMD Pediatrics, this event will provide valuable insights into neurofibromatosis, featuring expert speakers and discussions. 📍 Location: Conventus, Alford Auditorium (2nd Floor), 1001 […]
April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
May 10th - Patient and Family Neurofibromatosis & Schwannomatosis Symposium in Boston, MA. This event will feature expert discussions, the latest research updates, and resources for patients and families affected by neurofibromatosis and schwannomatosis.
May 14th - Join us to celebrate NF Northeast with good food, better drinks, and the best people at Margaritaville Boston on Wednesday, May 14!