Committed to Curing NF 2025
November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
12 events found.
Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community
November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.
Manchester City Marathon, Half Marathon, Relay and 5K
Run the Manchester City Marathon, Half Marathon, Relay & 5K for NF Northeast! Join us for the Manchester City Marathon, Half Marathon, Relay, or 5K, and turn your race into a powerful way to support those affected by neurofibromatosis (NF). Whether you’re going the full 26.2 miles, running a Half Marathon, teaming up for the […]
NF Community Chat – November
November 15th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]
Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh, who will discuss developmental, cognitive, and social-emotional challenges […]
NF Holiday Community Chat – December
December 18th - NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!
Tuesday Takeaways: NF Collective Highlights
Join us for our Tuesday Takeaways, a one-hour educational lunchtime session, geared towards sharing relevant updates and educational materials with our NF community. These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you familiar with the NF Collective? Join us to learn more about this […]
NF Community Chat – January
January 22nd - NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!
NF Coffee Chat – February
February 14th - NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!
13th Annual Cupid’s Chase 5K
February 8th - Join us for the 12th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
Family Bowling Event – Connecticut
February 22, 2026 - We’re thrilled to bring the Hartford area NF Northeast community together for a night of strikes, spares, and connection! Meet other families and enjoy some fun in a relaxed, welcoming environment.