NF Community Chat – June
ZoomJune 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
June 17th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
July 15th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 12th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will describe tips to facilitate productive conversations you can use at upcoming medical appointments.
August 14th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
August 17th - Offering limited bibs to run with NF Northeast for the 2025 Falmouth Road Race!
September 6th - Join us for our 14th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.
Run the Island Vines 10K, 5K & Kids Fun Run for NF Northeast! Start your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero, VT, in the Island Vines 10K & 5K! Whether you're running the 10K, 5K, or the half-mile Kids Fun Run, you can make every step count […]
September 15th - Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, giveaways, and an early dinner accompanied by awards, raffles, and a silent auction.
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
