Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by NF & allied disorders.

Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We'll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. A device with Wi-Fi/data and access to a search engine will be required to participate in the game.

Would you like to better understand the various tumors that affect those with NF1? Join us for this session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas, MPNSTs and more.

NF patients and families are invited to join us the evening of Tuesday, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or […]

Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital—will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF).

NF patients and families are invited to join us at 7pm on Tuesday, May 16th for a virtual chat during NF Awareness Month!

We are bringing the NF community together for a relaxing lunch time yoga session on Wednesday, May 17th at 12pm in honor of World NF Awareness Day—led by Avery Rausch, a certified yoga instructor with NF2.

Are you interested in learning more about how pain affects patients with NF and allied disorders? Dr. Buono will be discussing assessing and understanding pain along with patient advocacy representative Dale Berg.