Join us for this lunch & learn info session about summer camp opportunities for children with neurofibromatosis! Representatives from camps in the northeast will be sharing details about the unique experiences that their camps offer.
September 19th - Dr. David Miller and Katherine Piculell, Research Coordinator, from Boston Children’s Hospital will discuss their study on tumor early detection in NF1 patients.
October 17th - Dr. Rebecca Brown—Assistant Professor in the Department of Neurology at Mount Sinai Hospital—will dissect the evidence (or lack thereof) for how hormones affect tumors in NF1.
November 14th - Leah and Dasher Manth will be answering questions and discussing the benefits that a service dog can provide for patients and families affected by neurofibromatosis.
December 12th - Dr. Janusz will speak to the various ways family relationships can be affected by having a loved one with neurofibromatosis.
February 27th - Licensed Mental Health Counselor Jeffrey Malone will discuss identifying and coping with common mental health symptoms often experienced by those living with NF.
March 26th - Dr. Gary Brenner—Director of the Pain Medicine Fellowship at MGH—will discuss his research into developing novel therapies for the treatment of schwannomas.
April 30th - Robyn Fatseas, Complex Child Development Specialist, will share creative and thoughtful solutions for initiating a desired behavior change in your child.
