Join us for the Neurofibromatosis Educational Symposium on Saturday, April 5th, from 10:00 AM to 2:00 PM in Buffalo, NY. Hosted by John R. Oishei Children’s Hospital, Roswell Park Cancer […]

April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.

May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.