Support and Tools for NF1 Caregivers
March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.
10 events found.
Neurofibromatosis Educational Symposium
Join us for the Neurofibromatosis Educational Symposium on Saturday, April 5th, from 10:00 AM to 2:00 PM in Buffalo, NY. Hosted by John R. Oishei Children’s Hospital, Roswell Park Cancer […]
Tuesday Takeaways Session with Mike Sager: Advocating for Your Child
April 22nd - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals will be sharing helpful resources and strategies to use when advocating for those we care for with their medical team and beyond.
Tuesday Takeaways Session: Spotlight on NF Clinics in the Northeast
May 20th - In addition to general information about the NF clinics and providers available throughout the northeast, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children's Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs.
Tuesday Takeaways Session with Mike Sager: Transitioning to Early Adulthood
June 24th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will be sharing helpful resources and strategies for caregivers to use when transferring from pediatric to adult NF healthcare providers.
Tuesday Takeaways with Mike Sager: Productive Conversations with Healthcare Providers
August 12th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will describe tips to facilitate productive conversations you can use at upcoming medical appointments.
Tuesday Takeaways with Carey Pink: Music Therapy and Neurofibromatosis (NF)
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Tuesday Takeaways with Devorah Segal: Updates and Care Management – NF1 Plexiform Neurofibromas (NF1-PN)
November 4th - Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 […]
Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a […]
