On October 23rd in New York City, members of the NF Board of Directors proudly presented Dr. Kaleb Yohay with the NF Compassion in Action Care Award. This honor celebrates his

  Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School   We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast

Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!

We are incredibly excited to announce that Gomekli (mirdametinib) has been FDA-approved for the treatment of NF1-related plexiform neurofibromas in both adults and children!

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!

NF Northeast and the Peluso family together established the Bert Peluso Research Fund Award in loving memory of Bert Peluso and the incredible impact he had on the lives of those across the neurofibromatosis community.

A three-part empowerment series for young adults in the neurofibromatosis community led by Jeffrey Malone (Licensed Mental Health Counselor) and Anne Patterson (Director of Patient and Clinic Outreach at NF Northeast).

Why I Walk is a series highlighting the stories of those participating in our 2024 Steps2Cure NF walk series! If you’d like to share who or what motivates you to

A four-part lunch & learn speaker series with one-hour educational sessions geared towards sharing relevant updates and educational materials with our NF community—each session takes place one Tuesday of each month Feb – May!