Preparing for Clinical Trials

NF Northeast joined The REiNS International Collaboration founded by Dr. Scott Plotkin, Mass General Hospital, and Dr. Brigitte Widemann, of the National Cancer Institute (NCI) at the time, to achieve consensus within the NF community about the design of future clinical trials, with a specific emphasis on endpoints. Clinical endpoints are used in clinical trials to assess validity and generalizability of the study, and the evidence they generate is important to clinicians and patients alike. NF Northeast members participated by serving as patient representatives in working groups.