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How to Get Involved

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Ways to Give

Corporate Engagement with Neurofibromatosis (NF) Northeast

Make a Difference

Partner with Neurofibromatosis (NF) Northeast to help us realize our vision of a world where the burden of neurofibromatosis does not exist. We will create a customized partnership that is geographically relevant and uniquely your own, offering excellent visibility through our many events.

Our corporate partners fund innovative programs that make a difference for our patients and families impacted by neurofibromatosis. When your company participates financially as well as volunteering, the entire team benefits. This a great way to positively invest in and impact the communities in which you do business, and where your employees live.

The following are ways your corporation can get involved, raise awareness of your brand and show your commitment to curing NF.

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Sponsor an Event

We have large-scale walk/run and cycle events throughout the year in the Northeast. Event sponsorships are available at a wide variety of levels, each of which provides unique benefits to your organization. Partner to show your support and receive excellent year-long visibility and access to a deeply committed local group of supporters and event participants.

Employee Giving

NF Northeast relies on the generosity of local companies and your employees to be there for patients and families affected by neurofibromatosis and allied disorders.

Matching Gift Program

Employers that match charitable contributions made by their employees can double their impact and help us get closer to finding a cure for NF.

In-Kind Donations

In-kind donations are a fun, rewarding way to show your support for NF Northeast and our mission. They help us create one-of-a kind raffle experiences and help incentivize and motivate fundraising.

DIY Fundraising

Create and register a DIY fundraiser to help raise awareness of neurofibromatosis and allied diseases. Your participation will be completely your own, create a “jeans day” or a “donate your latte” day. Raise funds how and when you want in a way that works for your employees. Customize the length from 1 week to a whole year of giving.

Campaign Sponsorship

Sponsor an annual awareness and fundraising campaign. Awareness helps the organization enormously by getting the word out about neurofibromatosis through our social media channels.

Walk in a Box

Interested in our Steps2Cure NF Walk/Run but want to create a virtual event or a walk on your company campus? Our Walk in a Box gives you everything you need to create a Steps2Cure NF Walk/Run when and where you want. 

To learn more about any of our corporate engagement opportunities, contact us at info@nfnortheast.org

Get Involved

NF Community Outreach Committee

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The NF Community Outreach Committee’s mission is to educate and provide resources in  local communities among NF patients and their families throughout the Northeast. The group does this organically through word-of-mouth, working with local hospitals, reaching out to school nurses, and through social media. The committee helps with programs throughout the year, such as Matched for Hope, educational programs for patients and families, and Coffee Chats, just to name a few. They also help to plan social events such as an afternoon at a ballpark, playground meet-and-greet events, and restaurant nights. For more information about joining the group, please contact NFNE at info@nfnortheast.org.

Spread Awareness

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Download an NF Custom Background

Please feel free to download and use this NF Custom Background file for Zoom, Skype, or other meeting platforms  where you can set a custom background for video meetings. This helps us raise awareness of NF and our community. Click Here, to go to the jpeg image, then download it to your computer.

Beauty Mark Nation

Beauty Mark Nation (BMN) was created as a lighthearted and fun way to command attention, challenge public perception of skin spots, and create a high degree of visibility for the NF cause. Found mostly at fundraising events, the temporary tattoos created for BMN are the perfect way to spark a conversation and show your support for those with NF1! To learn more, Click Here. 

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Do-It-Yourself Events for NF

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Whether you’ve organized an event before or this is your first time, we want your fundraiser to be a success and we’re here to help. Combined with NF Northeast’s expertise in planning, tax receipting, policies and recognition, you can easily hold your own fundraising event that is meaningful for everyone. We know organizing and planning a fundraising event can be a huge task, which is why our team of experienced event staff is happy to support you and provide the tools you need.

What is a Do-It-Yourself Event?

A Do-It-Yourself Event (also known as a Third-Party Event) is when a business, organization, community group, school or individual hosts an event, fundraiser or program to benefit NF Northeast. It is planned and executed independently of NF Northeast.

I want to host a fundraiser, what should I do next?

Contact NF Northeast or download our Do It Yourself Events-Policy and Procedures and submit the Fundraiser Proposal Form. Once the agreement is signed and returned to us, you are ready to start promoting your event and we’re ready to help you. Or, to make it easy on yourself, set up a fundraising page that is linked directly to NF Northeast.

What NF Northeast Can Do:

  • Offer advice and information on event planning logistics.
  • Provide material and press release assistance.
  • Provide a letter of support to validate the event and its organizers.
  • Provide letters for volunteer hours.
  • Provide tax receipts for eligible donations.
  • Assist you with volunteer, speaker and/or sponsor recruitment.
  • Promote your event via our social media accounts.

    What NF Northeast Cannot Do:

    Provide any sponsorship, funding or reimbursement for event expenses (unless approved as a special circumstance).

  • Solicit or provide contact information for donors or staff.
  • Endorse applications for and/or obtain any necessary licenses or permits (i.e. gaming and/or liquor)
  • Approach potential sponsors (corporate or individual) on your behalf, or provide you with contacts for sponsorship.
  • Assume any legal or financial liability associated with your Do-It-Yourself Event.
  • Provide a tax receipt to the event organizer or one individual for the total funds raised by the event.

Examples of events that volunteers have organized for NF Northeast:

  • Dinner Parties
  • School Fundraisers
  • Wine Tasting
  • Office Parties
  • 1K Color Fun Runs
  • Golf Outings /Tournaments
  • Bake Sales
  • Jewelry Sales
  • Jeans Days at Work
  • Yard Sales
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Financials

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According to audited financial reports, our functional expenses are broken down as follows:

We have twice been featured in the Catalogue for Philanthropy, where we are described as “a highly efficient and worthy medical research charity in which you, too, can make a difference.”

For more information about our financials, please see GuideStar.

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Privacy Policy

Neurofibromatosis Northeast
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