Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by NF & allied disorders.
Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We'll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. A device with Wi-Fi/data and access to a search engine will be required to participate in the game.
Join us for this lunch & learn info session about summer camp opportunities for children with neurofibromatosis! Representatives from camps in the northeast will be sharing details about the unique experiences that their camps offer.
Would you like to better understand the various tumors that affect those with NF1? Join us for this session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas, MPNSTs and more.