• NF1 Community Education Series: Back to School

    Zoom

    NF Northeast invites you to join our Back to School program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Mike Sager, this free virtual session covers how to navigate the new school year for those affected by rare disease, including how to collaborate with schools and avoid […]

  • NF Coffee Chat – August

    Zoom

    Join us Tuesday, August 11th at 7:00 PM for a virtual NF coffee chat! Connect with others in the NF community for relaxed conversation and support. We hope to see you there!

  • Coast to the Cure 2026

    Stage Fort Park in Gloucester, MA 24 Hough Ave, Gloucester, MA, United States

    September 19th - Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.

  • Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners

    Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE 

  • NF1 Community Education Series: Career Readiness

    Zoom

    NF Northeast invites you to join our Career Readiness program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Kristen Clark, this free virtual session covers resume writing, interview preparation, and job search essentials, including dos and don'ts and advice for navigating common interview questions. Wednesday, October 14th […]