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  • NF Coffee Chat – September

    NF patients and their families and friends are invited to join us the morning of Saturday, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope […]

  • Coast to the Cure 2026

    Stage Fort Park in Gloucester, MA 24 Hough Ave, Gloucester, MA, United States

    September 19th - Join us for our 15th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.

  • Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners

    Mark your calendars! Beyond Sound 2026 is an empowering, in-person NF2 workshop, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. REGISTER HERE 

  • NF Community Chat – October

    Zoom

    NF patients and their families and friends are invited to join us the evening of Tuesday, October 6th at 7:00 PM for a community-building virtual chat! These are fantastic opportunities to connect with others affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join […]

  • NF1 Community Education Series: Career Readiness

    Zoom

    NF Northeast invites you to join our Career Readiness program, part of our NF1 Community Education Series sponsored by Alexion. Led by Alexion Patient Education Manager Kristen Clark, this free virtual session covers resume writing, interview preparation, and job search essentials, including dos and don'ts and advice for navigating common interview questions. Wednesday, October 14th […]

  • NF Coffee Chat – November

    Zoom

    NF patients and their families and friends are invited to join us the morning of Friday, November 21st at 9:00 AM for a community-building virtual coffee chat! These chats are a wonderful opportunity to connect with others who understand the NF journey and have open, casual conversations about whatever is on your mind. We hope […]

  • NF Holiday Chat – December

    Zoom

    NF patients and their families and friends are invited to join us the evening of Monday, December 15th at 7:00 PM for our special NF Holiday Chat! Come celebrate the season with others who understand the NF journey — share stories, connect with the community, and enjoy some holiday cheer together. We hope you can […]