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X-WR-CALNAME:Neurofibromatosis Northeast
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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20260804T190000
DTEND;TZID=America/New_York:20260804T200000
DTSTAMP:20260812T152343Z
CREATED:20250529T152300Z
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UID:4506-1785870000-1785873600@www.nfnortheast.org
SUMMARY:NF1 Community Education Series: Back to School
DESCRIPTION:NF Northeast invites you to join our Back to School program\, part of our NF1 Community Education Series sponsored by Alexion. \nLed by Alexion Patient Education Manager Mike Sager\, this free virtual session covers how to navigate the new school year for those affected by rare disease\, including how to collaborate with schools and avoid common\, frustrating obstacles. \nTuesday\, August 4th at 7:00 PM EST\nVirtual on Zoom \nRegister today using the link below or scan the QR code on the flyer.\nREGISTER HERE \nQuestions? Reach out to us anytime at nfnortheast.org. This program may be available in Spanish upon request.
URL:https://www.nfnortheast.org/event/nf1-community-education-series-back-to-school/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/Alexion_Back_to_School.png
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DTSTART;TZID=America/New_York:20260810T183000
DTEND;TZID=America/New_York:20260810T203000
DTSTAMP:20260812T152249Z
CREATED:20250530T155250Z
LAST-MODIFIED:20260812T152249Z
UID:4536-1786386600-1786393800@www.nfnortheast.org
SUMMARY:Pain in Schwannomatosis (SWN) - A Holistic Approach to Pain Care
DESCRIPTION:Join us for a discussion with Dr. Rebecca Brown\, Director of the UAB NF Clinic\, and Dr. Brian Mayrsohn\, Founder of Maywell Pain Management. They’ll explore a holistic\, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). \nMonday\, August 10\, 2026 \n6:30 PM to 8:30 PM EST \nVirtual Event (Zoom) \nRegister Here
URL:https://www.nfnortheast.org/event/pain-in-schwannomatosis-swn-a-holistic-approach-to-pain-care/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
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DTSTART;TZID=America/New_York:20260811T190000
DTEND;TZID=America/New_York:20260811T200000
DTSTAMP:20260812T152417Z
CREATED:20250513T154450Z
LAST-MODIFIED:20260812T152417Z
UID:4456-1786474800-1786478400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - August
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, August 11th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats!  \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-august/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/August-2026.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260816
DTEND;VALUE=DATE:20260817
DTSTAMP:20260818T144614Z
CREATED:20250510T202006Z
LAST-MODIFIED:20260818T144614Z
UID:4376-1786838400-1786924799@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2026
DESCRIPTION:NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday\, August 16\, 2026. \nIn order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1500 fundraising minimum. Bib numbers are limited\, so act fast to claim your spot for this iconic race! \nFor more information and to register to run for NF Northeast please visit the 2026 ASICS Falmouth Road Race registration site. For more information on the race\, visit: https://falmouthroadrace.com/ \n 
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2026/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/ChatGPT-Image-May-15-2026-04_00_53-PM.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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