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X-WR-CALNAME:Neurofibromatosis Northeast
X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251005T074500
DTEND;TZID=America/New_York:20251005T120000
DTSTAMP:20250924T203212Z
CREATED:20250616T194731Z
LAST-MODIFIED:20250924T203212Z
UID:3051-1759650300-1759665600@www.nfnortheast.org
SUMMARY:Maine Marathon\, Half Marathon\, and Relay
DESCRIPTION:Maine Marathon – Run for NF Northeast \nJoin Team NF Northeast at the Maine Marathon\, Half Marathon\, and Relay on October 5\, 2025\, in Portland\, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. \nLimited bibs available — contact ktrainor@nfnortheast.org for more information
URL:https://www.nfnortheast.org/event/maine-marathon/
LOCATION:Pedro Field\, 55 Baxter Boulevard\, Portland\, ME\, United States
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/webp:https://www.nfnortheast.org/wp-content/uploads/2025/06/MM2025-Logo-800.webp
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251016T183000
DTEND;TZID=America/New_York:20251016T200000
DTSTAMP:20250924T203221Z
CREATED:20250910T024013Z
LAST-MODIFIED:20250924T203221Z
UID:3277-1760639400-1760644800@www.nfnortheast.org
SUMMARY:Treatment Landscape in NF1-Plexiform Neurofibromas
DESCRIPTION:Treatment Landscape in NF1-Plexiform Neurofibromas: A Webinar for Patients and Caregivers of Individuals with NF1 \nJoin NF Northeast the evening of Thursday\, October 16th for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN)\, and their caregivers. This seminar will provide valuable resources for current clinical trials\, discuss navigating care and treatment options\, and share a powerful mother/ daughter perspective on living with NF1-PN. \nRegister Here \nFeatured Speakers: \n\nGurcharanjeet Kaur\, MD – Pediatric Neurologist/Neuro-oncologist\, Assistant Professor of Neurology and Pediatrics\, Director – NYP-Columbia NF Center\nVanessa Merker\, PhD – Assistant Professor of Neurology Massachusetts General Hospital/Harvard Medical School\nSamantha and Michelle P. – Sharing a powerful mother-daughter perspective\n\nThere will be a Q&A session where patients and caregivers will have the opportunity to ask questions. \nSponsored By:
URL:https://www.nfnortheast.org/event/treatment-landscape-in-nf1-plexiform-neurofibromas/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/WEB-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T190000
DTEND;TZID=America/New_York:20251021T200000
DTSTAMP:20250924T203224Z
CREATED:20250903T032410Z
LAST-MODIFIED:20250924T203224Z
UID:3241-1761073200-1761076800@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Tuesday\, October 21st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-oct25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/October-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T090000
DTEND;TZID=America/New_York:20251025T140000
DTSTAMP:20251024T181454Z
CREATED:20250909T000405Z
LAST-MODIFIED:20251024T181454Z
UID:3245-1761382800-1761400800@www.nfnortheast.org
SUMMARY:NF Northeast Fall Hike for NF: Never Stop Climbing - Mount Agamenticus
DESCRIPTION:Unfortunately\, we’ll be canceling this Saturday’s Fall Hike for NF at Mount Agamenticus. \n\nThank you to everyone who showed interest and helped spread the word. \n\nWe’re already planning more community events and hope you’ll join us next time! 💙🌲
URL:https://www.nfnortheast.org/event/nf-northeast-fall-hike-mount-agamenticus/
LOCATION:Mount Agamenticus\, York\, Maine
CATEGORIES:Endurance Event
ATTACH;FMTTYPE=image/webp:https://www.nfnortheast.org/wp-content/uploads/2025/09/nfnortheast-fall-hike.webp
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251026T091500
DTEND;TZID=America/New_York:20251026T130000
DTSTAMP:20250924T203233Z
CREATED:20250331T233942Z
LAST-MODIFIED:20250924T203233Z
UID:2915-1761470100-1761483600@www.nfnortheast.org
SUMMARY:Newburyport Half Marathon\, Relay\, 5K
DESCRIPTION:Run the Newburyport Half Marathon\, Relay & 5K for NF Northeast! \nTake on the Newburyport Half Marathon\, Relay\, or 5K and make your miles matter! This scenic race through historic Newburyport\, MA\, offers a beautiful course and the chance to support NF Northeast. \nWhether you’re running solo in the Half Marathon or 5K\, or teaming up for the Relay\, you can help raise awareness and funds for those affected by neurofibromatosis (NF). \nReady to run for a cause? Join Team NF Northeast and be part of something bigger! \nFor more information\, contact Kim Trainor at ktrainor@nfnortheast.org
URL:https://www.nfnortheast.org/event/newburyport-half-marathon-relay-5k/
LOCATION:Cashman Park\, Sally Snyder Way\, Newburyport\, Massachusetts
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/03/Screenshot-2025-03-31-at-19-37-56-Xfinity-Newburyport-Half-Marathon-Online-Registration.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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