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X-WR-CALNAME:Neurofibromatosis Northeast
X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20250906T060000
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DTSTAMP:20260415T022124
CREATED:20250213T184755Z
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UID:2791-1757138400-1757170800@www.nfnortheast.org
SUMMARY:Coast to the Cure 2025
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 14th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2025 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, Coast to the Cure water bottle\, SAG wagon\, post-ride lunch by a local food truck\, and beer garden entrance (21+). \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site ($25 per additional ticket). \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.\n  \nSpecial thanks to our Mission Sponsor: \n \nThank you to our Platinum Sponsor:
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2025/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Coast-Web-Graphic-2.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250914T090000
DTEND;TZID=America/New_York:20250914T120000
DTSTAMP:20260415T022124
CREATED:20250331T233107Z
LAST-MODIFIED:20250923T143408Z
UID:2910-1757840400-1757851200@www.nfnortheast.org
SUMMARY:Island Vines 10K & 5K
DESCRIPTION:Run the Island Vines 10K\, 5K & Kids Fun Run for NF Northeast! \nStart your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero\, VT\, in the Island Vines 10K & 5K! Whether you’re running the 10K\, 5K\, or the half-mile Kids Fun Run\, you can make every step count by supporting NF Northeast. \nJoin Team NF Northeast to help raise awareness and funds for those affected by neurofibromatosis (NF)—all while enjoying a scenic and fun-filled race experience. \nReady to run for a cause? Sign up today and be part of something meaningful! \nFor more information\, contact Kim Trainor at ktrainor@nfnortheast.org
URL:https://www.nfnortheast.org/event/island-vines-10k-5k/
LOCATION:Snow Farm Vineyard\, 153 West Shore Rd\, South Hero\, Vermont
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/03/Screenshot-2025-03-31-at-19-30-12-Island-Vines-5k-Running-Race-in-Vt-RunVermont.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250920T090000
DTEND;TZID=America/New_York:20250920T100000
DTSTAMP:20260415T022124
CREATED:20250903T032139Z
LAST-MODIFIED:20250923T143418Z
UID:3238-1758358800-1758362400@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and families are invited to join us at 9am on Saturday\, September 20th for a virtual NF coffee chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-sept25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/September-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250930T120000
DTEND;TZID=America/New_York:20250930T130000
DTSTAMP:20260415T022124
CREATED:20250806T154957Z
LAST-MODIFIED:20250924T203113Z
UID:3201-1759233600-1759237200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Carey Pink: Music Therapy and Neurofibromatosis (NF)
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the first session of our Fall 2025 Tuesday Takeaways series\, please join us to learn more about the neurological and psycho-social benefits of music therapy for individuals living with NF. Carey Pink\, MT-BC\, NMT\, is a Board Certified Music Therapist who specializes in neurologic music therapy. She will share how music therapy can support emotional well-being\, cognitive function\, social connection\, and more! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-carey-pink/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/08/September-2025-WEB-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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