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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20250812T120000
DTEND;TZID=America/New_York:20250812T130000
DTSTAMP:20260415T020541
CREATED:20250715T231657Z
LAST-MODIFIED:20250813T185313Z
UID:3193-1755000000-1755003600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Mike Sager: Productive Conversations with Healthcare Providers
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the final session of our Spring/Summer 2025 Tuesday Takeaways series\, we turn our focus to advocating successfully with healthcare providers. Creating productive conversations with physicians and other members of your medical care team is incredibly important. Mike Sager\, Patient Education Manager at Alexion\, will describe the various components of productive conversations you can use at upcoming medical appointments. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-productive-convos-healthcare-providers/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/07/August-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20250814T190000
DTEND;TZID=America/New_York:20250814T200000
DTSTAMP:20260415T020541
CREATED:20250603T181223Z
LAST-MODIFIED:20250819T143524Z
UID:3030-1755198000-1755201600@www.nfnortheast.org
SUMMARY:NF Community Chat - August
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Thursday\, August 14th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-august25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/August-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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DTSTART;VALUE=DATE:20250817
DTEND;VALUE=DATE:20250818
DTSTAMP:20260415T020541
CREATED:20250321T191209Z
LAST-MODIFIED:20250819T143601Z
UID:2869-1755388800-1755475199@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2025
DESCRIPTION:NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday\, August 17\, 2025. \nIn order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1200 fundraising minimum. Bib numbers are limited\, so act fast to claim your spot for this iconic race! \nFor more information and to register to run for NF Northeast please visit the 2025 ASICS Falmouth Road Race registration site. For more information on the race\, visit: https://falmouthroadrace.com/ \n 
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2025-2/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Fundraiser
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ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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