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X-WR-CALNAME:Neurofibromatosis Northeast
X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20241105T120000
DTEND;TZID=America/New_York:20241105T130000
DTSTAMP:20260409T043718
CREATED:20241016T184432Z
LAST-MODIFIED:20241105T202511Z
UID:2392-1730808000-1730811600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #5 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our fifth session of our Fall 2024 series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you interested in learning helpful techniques that will improve how you advocate for yourself? Join us for an information session where Mike will share tips and strategies on how to advocate for yourself at home\, work\, medical appointments and more. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December. Find our other sessions on our event calendar: nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-5-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/November-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20241109T180000
DTEND;TZID=America/New_York:20241109T230000
DTSTAMP:20260409T043718
CREATED:20240524T164510Z
LAST-MODIFIED:20241119T153220Z
UID:2116-1731175200-1731193200@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are so excited to announce the 15th Annual Committed to Curing NF Fundraiser will take place on Saturday\, November 9th 2024! \nPlease join the Malerba family at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who are unable to join on this special night\, try your luck in one of the drawings and/or make a tax-deductible donation to NF Northeast! \nEvent Tickets: \nEvent Tickets — $50 each \nReserve of Table of Ten — $500  \nPurchase Tickets \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nMystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \nVIP EXPERIENCE DRAWING – $35 per ticket \nWatch the World Champion Boston Celtics (2/23/25) OR the Boston Bruins (1/25/25) from a private luxury suite for 21 people on Level 6 of TD Garden. This VIP suite offers your group a private\, comfortable atmosphere with fantastic views of the on-court action. The included 1K in-suite catering makes this a day to remember!! \nWinning Package Includes: \n\n\n\n21 suite tickets to a private luxury suite near center ice on Level 6\n2 VIP parking passes on Level 1 of the TD Garden Garage\nFood & Beverage package included worth $1K\nAccess to private BGS entrances with dedicated elevators that bring you straight from the parking garage or street level to your suite level\nEarly access to the arena\, starting 2 hours prior to the game\nA private common area for mingling plus a private restroom\nA dedicated suite attendant for your food & beverage needs. Various options for food and beverage add-ons are available for purchase.\nAccess to Society Provisions and Society Harborview Lounge\n\n\n\nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nNF Champion Donor – $1\,500 Donation \n  \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their seventeen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $950\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-3/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
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DTSTART;TZID=America/New_York:20241116T120000
DTEND;TZID=America/New_York:20241116T150000
DTSTAMP:20260409T043718
CREATED:20241030T190939Z
LAST-MODIFIED:20241119T153224Z
UID:2413-1731758400-1731769200@www.nfnortheast.org
SUMMARY:Kendra Scott Gives Back Event with NF Northeast
DESCRIPTION:Join us at Kendra Scott’s Give Back Event to check two things off your list this holiday season—shopping for gifts and supporting a great cause! We’ve partnered with Kendra Scott to throw a Kendra Gives Back event during which 20% of purchases made in-store during the hosted event or digitally through kendrascott.com (using a custom code) will directly benefit NF Northeast! \nWe’re hosting these events in-store throughout the northeast on Saturday\, November 16th from 12pm – 3pm at the following locations: \n\nLegacy Place\, Dedham\, MA\nMarket Street\, Lynnfield\, MA\nGarden State Shopping Mall\, Paramus\, NJ\nSuburban Square\, Ardmore\, PA\n\nOr online from Saturday\, November 16th through Monday\, November 18th using the code: GIVEBACK-HVQZD \nShop Online \nWe hope you can shop with us in-store or online to shine bright and do good this holiday season!
URL:https://www.nfnortheast.org/event/kendra-scott-gives-back-event-with-nf-northeast/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/Kendra-Scott-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T190000
DTEND;TZID=America/New_York:20241119T200000
DTSTAMP:20260409T043718
CREATED:20240821T174118Z
LAST-MODIFIED:20241120T021538Z
UID:2325-1732042800-1732046400@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, November 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-nov24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/November-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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