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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20241008T120000
DTEND;TZID=America/New_York:20241008T130000
DTSTAMP:20260410T071555
CREATED:20240821T151119Z
LAST-MODIFIED:20241009T151344Z
UID:2313-1728388800-1728392400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the third session of our Fall 2024 Tuesday Takeaways series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will share helpful resources and strategies to use when advocating for those we care for while engaging with their medical team and beyond. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/October-1-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241012T090000
DTEND;TZID=America/New_York:20241012T100000
DTSTAMP:20260410T071555
CREATED:20240904T175745Z
LAST-MODIFIED:20241015T150924Z
UID:2350-1728723600-1728727200@www.nfnortheast.org
SUMMARY:NF Charla de Café - Octubre
DESCRIPTION:¡Únase a nosotros en este chat comunitario para hispanohablantes realizado completamente en español! \n¡Los pacientes de NF y sus familiares están invitados a unirse a nosotros el sábado 12 de octubre por la mañana a las 9 a.m. para una charla de café virtual en español para crear comunidad! Estos chats son oportunidades fantásticas para conocer a otras personas afectadas por NF y tener conversaciones informales sobre las preocupaciones y preguntas del díaa día que puedan surgir. ¡Esperamos que puedas unirte a nosotros! \nRegístrate Aquí \n*Después de registrarse\, recibirá un correo electrónico de confirmación con información sobre cómo unirse a la reunión
URL:https://www.nfnortheast.org/event/nf-community-chat-octubre/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/09/October-24-SPANISH.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241013T073000
DTEND;TZID=America/New_York:20241013T130000
DTSTAMP:20260410T071555
CREATED:20240619T221902Z
LAST-MODIFIED:20241015T150927Z
UID:2198-1728804600-1728824400@www.nfnortheast.org
SUMMARY:2024 Amica Newport Marathon
DESCRIPTION:We’re so excited to offer a limited number of bibs for the 2024 Amica Newport Marathon in Newport\, Rhode Island! Join us on Sunday\, October 13th for a lovely fall running event on the northeast shoreline. Our bib offerings include the full marathon\, the half marathon\, OR virtual participation in either event—with a fundraising minimum of $500\, which includes your race registration fee! You’ll also have the chance to design your own personalized fundraising page to help motivate donors! \nRegister Here \n*Use above link to sign up with Team NF Northeast for no registration fee. Once registered\, a NF Northeast staff member will reach out with further instruction on setting up your fundraising page. \nNF Northeast offers coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Newport Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running\, nutrition\, fundraising\, and more! \nBib numbers are extremely limited\, so act fast to claim your spot for this annual fall classic race! Half and full marathon are USATF-certified. 
URL:https://www.nfnortheast.org/event/2024-amica-newport-marathon/
LOCATION:Easton’s Beach\, 175 Memorial Blvd\, Newport\, RI\, 02840\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/Newport-Marathon.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241014T190000
DTEND;TZID=America/New_York:20241014T200000
DTSTAMP:20260410T071555
CREATED:20240821T125419Z
LAST-MODIFIED:20241015T150931Z
UID:2301-1728932400-1728936000@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #3
DESCRIPTION:Please join us for our third and final session of our fall Young Adult Empowerment series. The focus will be identifying hurdles of living with a chronic medical condition and establishing tools to help you achieve your goals. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions. \n\n\n\n\n\nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-3/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T121500
DTEND;TZID=America/New_York:20241015T131500
DTSTAMP:20260410T071555
CREATED:20240724T140258Z
LAST-MODIFIED:20241022T150505Z
UID:2272-1728994500-1728998100@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Amanda Bergner
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the fourth session of our Fall 2024 Tuesday Takeaways series\, we welcome NF/SWN expert and genetic counselor\, Amanda Bergner\, to talk about various aspects of family planning across the lifespan for people with NF or schwannomatosis and their loved ones. Amanda will provide an overview of recent literature on topics such as birth control\, dating and disclosure to others\, considerations in pregnancy\, and options for genetic testing including preimplantation genetic testing (PGT). Bring your questions\, we’ll have time for discussion afterwards! \nRegister Here \n*Please note this Tuesday Takeaways session begins at 12:15PM\, 15 minutes later than usual \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/October-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241029T180000
DTEND;TZID=America/New_York:20241029T203000
DTSTAMP:20260410T071555
CREATED:20240724T193158Z
LAST-MODIFIED:20241030T001909Z
UID:2277-1730224800-1730233800@www.nfnortheast.org
SUMMARY:Hike for NF: Never Stop Climbing - Halloween Hike
DESCRIPTION:**This hike replaces the Harvest Super Moon Hike. The date was changed due to the threat of mosquito borne illness in the area.** \nWe’re bringing back Hike for NF: Never Stop Climbing for another year—but this time with a spooky twist! \nJoin us the evening of Tuesday\, October 29th for our third annual fundraising hike\, this time with a fun-filled Halloween theme. Hikers will experience the sounds and sights of Horn Pond in Woburn as the sun goes down\, using their heightened senses to connect with the nature around them. The hike is a flat\, 2-mile loop around the pond\, with an optional climb for a rewarding view of the Boston skyline at the end! Meet time is 6pm – the hike will begin promptly at 6:15pm. Costumes and festive Halloween attire are encouraged! After the hike\, head over to Lord Hobo Brewery in Woburn for a Halloween trivia session. \nRegistration:Adults – $30Children – $15 \nRegister \nThere is no minimum fundraising amount. However\, we are offering incentives\, should you wish to fundraise. All registration fees must be paid in advance to secure your spot to hike. \n\nFundraise $100 to select any NF merchandise\nFundraise $250 and you will receive a NF cooler or crossbody bag\nFundraise $500 and you will receive a bluetooth speaker and earbud kit\n\nContact info@nfnortheast.org or 781-272-9936 for more information! \nWhen life gives you mountains\, put on your boots and hike!
URL:https://www.nfnortheast.org/event/hike-for-nf-never-stop-climbing-halloween-hike/
LOCATION:Horn Pond\, 93 Lake Avenue\, Woburn\, 01801\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/Hike-Banner-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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