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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20230506T160000
DTEND;TZID=America/New_York:20230506T200000
DTSTAMP:20260410T054804
CREATED:20230302T185737Z
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UID:1169-1683388800-1683403200@www.nfnortheast.org
SUMMARY:Hats\, Horses\, & Hope
DESCRIPTION:Hats\, Horses\, & Hope – A Kentucky Derby party in support of NF Northeast. Your evening will include Southern fare style dinner\, cash bar\, raffles\, and race betting! Prizes will be given for the best Kentucky Derby hat and outfit. Event begins at 4:00pm and will end promptly at 8:00pm. \n\n\n\nRegister Now \n \n \nRegistration Fees: \nRegistration – $100 \n\n\n\n\n\n\n\n\nRegistration fee includes a southern fare dinner! \n\n\n\n\n\n\n\n\n\n\n\n 
URL:https://www.nfnortheast.org/event/hats-horses-hope/
LOCATION:Wright-Locke Farm\, 82 Ridge Street\, Winchester\, MA\, 01890\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2023/03/Hats-Horses-and-Hope-p1.jpeg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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DTSTART;TZID=America/New_York:20230516T190000
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UID:1282-1684263600-1684267200@www.nfnortheast.org
SUMMARY:NF Community Chat - May (NF Awareness Month Edition!)
DESCRIPTION:May is an incredibly significant month for the NF community\, being NF Awareness Month\, which means gathering together and connecting as a community is even more impactful! \nNF patients and families are invited to join us at 7pm on Tuesday\, May 16th for a virtual chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We may have some fun ice-breaker games too! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.nfnortheast.org/event/nf-community-chat-may-nf-awareness-month-edition/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/May-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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DTSTART;TZID=America/New_York:20230517T120000
DTEND;TZID=America/New_York:20230517T130000
DTSTAMP:20260410T054804
CREATED:20230426T202427Z
LAST-MODIFIED:20230522T215744Z
UID:1272-1684324800-1684328400@www.nfnortheast.org
SUMMARY:Yoga in Solidarity for World NF Awareness Day
DESCRIPTION:We are bringing the NF community together for a relaxing lunch time yoga session on Wednesday\, May 17th at 12pm in honor of World NF Awareness Day! \nThe class will be led by Avery Rausch – a certified yoga instructor with NF2 who lives in New York City. Avery has a passion for sharing his talents and knowledge about yoga\, especially with others who are living with neurofibromatosis. \nThis class is open to all levels – please join us and bring a friend! \n*This class has been cancelled due to an unforeseen scheduling conflict with the yoga instructor.
URL:https://www.nfnortheast.org/event/yoga-in-solidarity-for-world-nf-awareness-day/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/NF-Awareness-Month-Yoga-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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DTSTART;TZID=America/New_York:20230530T120000
DTEND;TZID=America/New_York:20230530T130000
DTSTAMP:20260410T054804
CREATED:20230503T003000Z
LAST-MODIFIED:20230530T184748Z
UID:1286-1685448000-1685451600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Dr. Frank Buono
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our fourth and final session\, we’re welcoming Dr. Frank Buono (PhD\, Associate Research Scientist at Yale School of Medicine)\, Dale Berg (patient advocacy representative)\, and Maureen Hussey (NF1 patient caregiver). \nAre you interested in learning more about how pain affects patients with NF and allied disorders? Dr. Buono will be discussing assessing and understanding pain in neurofibromatosis (NF)\, NF2-related schwannomatosis (NF2) and schwannomatosis (SWN). He will be joined by patient advocacy representative Dale Berg and NF1 caregiver Maureen Hussey. \nRegister Here \nThank you to all who have tuned in for our Tuesday Takeaway series this spring—keep an eye out for another series in the fall!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-4-with-dr-frank-buono/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/Tuesday-Takeaways-Buono.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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