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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T183000
DTEND;TZID=America/New_York:20260810T203000
DTSTAMP:20260812T152249Z
CREATED:20250530T155250Z
LAST-MODIFIED:20260812T152249Z
UID:4536-1786386600-1786393800@www.nfnortheast.org
SUMMARY:Pain in Schwannomatosis (SWN) - A Holistic Approach to Pain Care
DESCRIPTION:Join us for a discussion with Dr. Rebecca Brown\, Director of the UAB NF Clinic\, and Dr. Brian Mayrsohn\, Founder of Maywell Pain Management. They’ll explore a holistic\, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). \nMonday\, August 10\, 2026 \n6:30 PM to 8:30 PM EST \nVirtual Event (Zoom) \nRegister Here
URL:https://www.nfnortheast.org/event/pain-in-schwannomatosis-swn-a-holistic-approach-to-pain-care/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T190000
DTEND;TZID=America/New_York:20260811T200000
DTSTAMP:20260812T152417Z
CREATED:20250513T154450Z
LAST-MODIFIED:20260812T152417Z
UID:4456-1786474800-1786478400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - August
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, August 11th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats!  \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-august/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/August-2026.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260816
DTEND;VALUE=DATE:20260817
DTSTAMP:20260818T144614Z
CREATED:20250510T202006Z
LAST-MODIFIED:20260818T144614Z
UID:4376-1786838400-1786924799@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2026
DESCRIPTION:NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday\, August 16\, 2026. \nIn order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1500 fundraising minimum. Bib numbers are limited\, so act fast to claim your spot for this iconic race! \nFor more information and to register to run for NF Northeast please visit the 2026 ASICS Falmouth Road Race registration site. For more information on the race\, visit: https://falmouthroadrace.com/ \n 
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2026/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/ChatGPT-Image-May-15-2026-04_00_53-PM.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T180000
DTEND;TZID=America/New_York:20260910T190000
DTSTAMP:20260915T144613Z
CREATED:20250509T135128Z
LAST-MODIFIED:20260915T144613Z
UID:4557-1789063200-1789066800@www.nfnortheast.org
SUMMARY:The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis
DESCRIPTION:Thursday\, September 10 6:00 PM ET \nJoin NF Northeast for an educational presentation on The STARFISH Clinical Trial for Pain Relief in Non-NF2 Related Schwannomatosis\, presented by Scott Plotkin\, MD\, and Vanessa Merker\, PhD. \nThis program will provide an overview of the STARFISH clinical trial\, including its goals and the latest information on research focused on pain relief for individuals with non-NF2 related schwannomatosis. \nRegister Here
URL:https://www.nfnortheast.org/event/the-starfish-clinical-trial-for-pain-relief-in-non-nf2-related-schwannomatosis/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260912T090000
DTEND;TZID=America/New_York:20260912T100000
DTSTAMP:20260915T144444Z
CREATED:20250512T172855Z
LAST-MODIFIED:20260915T144444Z
UID:4607-1789203600-1789207200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - September
DESCRIPTION:NF patients and their families and friends are invited to join us the morning of Saturday\, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-september/
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-coffee-chat.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T090000
DTEND;TZID=America/New_York:20260914T170000
DTSTAMP:20260915T144643Z
CREATED:20250508T152533Z
LAST-MODIFIED:20260915T144643Z
UID:4299-1789376400-1789405200@www.nfnortheast.org
SUMMARY:2026 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 14th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nRegistration \n\n\n\n\n$200 – Individual \n$800 – Foursome \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, and a buffet supper following golf. \nRegister for Fall Golf Classic \n\n  \nSponsorship Information \nPresenting Sponsor – $5\,000 \n\nCompany name as Presenting Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nThree (3) tee box sponsorships\nAdmission for eight (8) golfers\nRecognition on website/marketing materials\nSpeaking opportunity during dinner program\n\n\nPlatinum Sponsor – $3\,000 \n\nCompany name as Platinum Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nTwo (2) tee box sponsorships\nAdmission for four (4) golfers at tournament\nRecognition during dinner program\nCompany name on event signage\n\n\nGold Sponsor – $1\,500 \n\nCompany name as Gold Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nTwo (2) tee box sponsorships\nRecognition during dinner program\nCompany name on event signage\n\n\nSilver Sponsor – $750 \n\nCompany name as Silver Sponsor on welcome sign displayed at event\nOne (1) tee box sponsorship\nRecognition during dinner program\nCompany name on event signage\n\n\nGolf Cart Sponsor – $500 \n\nCompany name & website on all golf carts\n\n\nTee Sponsor – $150 \n\nOne (1) tee box sponsorship\n\n*All collateral subject to approval by NF Northeast \n\nPlease contact Lauren Gilbert for more information on making an impact through event sponsorship.
URL:https://www.nfnortheast.org/event/2026-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/03/Greater-Boston-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260922T145216Z
CREATED:20250512T162249Z
LAST-MODIFIED:20260922T145216Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T083000
DTEND;TZID=America/New_York:20260926T160000
DTSTAMP:20261008T135703Z
CREATED:20250502T184315Z
LAST-MODIFIED:20261008T135703Z
UID:4464-1790411400-1790438400@www.nfnortheast.org
SUMMARY:Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners
DESCRIPTION:Mark your calendars! Beyond Sound 2026 is an empowering\, in-person NF2 workshop\, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. \nREGISTER HERE 
URL:https://www.nfnortheast.org/event/beyond-sound-2026-a-day-for-nf2-swn-patients-care-partners/
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/BEYOND-SOUND-2026-SAVE-THE-DATE-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261004T074500
DTEND;TZID=America/New_York:20261004T120000
DTSTAMP:20261009T170359Z
CREATED:20250422T214336Z
LAST-MODIFIED:20261009T170359Z
UID:4622-1791099900-1791115200@www.nfnortheast.org
SUMMARY:Maine Marathon\, Half Marathon\, and Relay
DESCRIPTION:Maine Marathon – Run for NF Northeast \nJoin Team NF Northeast at the Maine Marathon\, Half Marathon\, and Relay on October 4\, 2026\, in Portland\, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. \nLimited bibs available — contact ktrainor@nfnortheast.org for more information
URL:https://www.nfnortheast.org/event/maine-marathon-half-marathon-and-relay/
LOCATION:Pedro Field\, 55 Baxter Boulevard\, Portland\, ME\, United States
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/webp:https://www.nfnortheast.org/wp-content/uploads/2025/06/MM2025-Logo-800.webp
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261006T190000
DTEND;TZID=America/New_York:20261006T200000
DTSTAMP:20261008T134940Z
CREATED:20250426T174511Z
LAST-MODIFIED:20261008T134940Z
UID:4610-1791313200-1791316800@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Tuesday\, October 6th at 7:00 PM for a community-building virtual chat! These are fantastic opportunities to connect with others affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-october-3/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-Community-chat.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261023T080000
DTEND;TZID=America/New_York:20261023T170000
DTSTAMP:20261023T220222Z
CREATED:20231118T171858Z
LAST-MODIFIED:20261023T220222Z
UID:1631-1792742400-1792774800@www.nfnortheast.org
SUMMARY:Previous Events
DESCRIPTION:Click Here to View Previous Events
URL:https://www.nfnortheast.org/event/previous-events/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/11/White-Background.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261031T100000
DTEND;TZID=America/New_York:20261101T100000
DTSTAMP:20261008T140045Z
CREATED:20260423T181959Z
LAST-MODIFIED:20261008T140045Z
UID:4601-1793440800-1793527200@www.nfnortheast.org
SUMMARY:Cambridge 5K & Half Marathon
DESCRIPTION:Join Team NF Northeast for the Cambridge 5K & Half Marathon and turn your miles into meaningful support for individuals and families affected by neurofibromatosis (NF). \nWhether you’re an experienced runner tackling the Half Marathon\, looking for a fun and fast 5K\, or ready to take on both events\, you’ll be part of a community committed to advancing research\, increasing awareness\, and supporting those living with NF. \nAs an NF Northeast charity runner\, you’ll receive fundraising support\, race-day encouragement\, and the opportunity to make a direct impact while participating in one of New England’s premier running events. \nChoose your distance\, set your goal\, and join us in Cambridge for an unforgettable race weekend. \nFor more information\, contact Kim Trainor at ktrainor@nfnortheast.org \nLink to register:  https://runsignup.com/Race/MA/Cambridge/CambridgeHalfMarathon
URL:https://www.nfnortheast.org/event/cambridge-half-marathon-2/
LOCATION:CambridgeSide Galleria\, 100 Cambridgeside Pl\, Cambridge\, Massachusetts
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Untitled-design1-e1786714468149.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261113T180000
DTEND;TZID=America/New_York:20261113T220000
DTSTAMP:20261009T171617Z
CREATED:20260423T160759Z
LAST-MODIFIED:20261009T171617Z
UID:4652-1794592800-1794607200@www.nfnortheast.org
SUMMARY:Committed to Curing NF Celebrates 17 Years! Join Us November 13
DESCRIPTION:Join the Malerba Family on Friday\, November 13\, 2026\, at The Great American Beer Hall in Medford\, MA\, as they celebrate 17 years of Committed to Curing NF! \nThis special evening will bring together family\, friends\, and supporters for light appetizers\, raffles\, prizes\, and an opportunity to support NF Northeast’s mission. \nAdmission is free\, and everyone is welcome to attend! \nEvent Details \nDate: Friday\, November 13\, 2026\nLocation: The Great American Beer Hall\, Medford\, MA\nAdmission: Free \nRaffles and Prizes \nSupport the cause and enter for a chance to win! \n\n50/50 Drawing ($25): Win half the raffle pot\, with the other half benefiting NF Northeast.\nScratch Ticket Tree ($25): A chance to win $300 worth of scratch tickets.\nGolf Foursome ($25): A round of golf with a cart at Hickory Hill Golf Course in Methuen\, MA.\n\nOnline raffle sales close Thursday\, November 12\, at 6:00 PM. Tickets will also be available for purchase at the event. \nSupport the Mission \nCan’t attend? You can still make a difference! Donations are welcome at any amount\, with special recognition available through donor levels ranging from $100 to $1\,500. \nDonations and raffle purchases can also be made by check or Venmo (@NF-NORTHEAST). Please indicate your donation level or raffle selection in the payment memo. \nRegister\, Donate\, or Purchase Raffle Tickets \nHelp celebrate 17 years of raising awareness\, supporting families\, and working toward a cure for NF! \nREGISTER\, DONATE & PURCHASE RAFFLE TICKETS \n17 Years. One Mission. One Goal: Cure NF!
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-celebrates-17-years-join-us-november-13/
LOCATION:Great American Beer Hall\, 142 Mystic Avenue\, Medford\, MA\, 02155\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Final-CCNF26-flyer.png
ORGANIZER;CN="Melissa Malerba":MAILTO:melissamalerba2028@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261114T090000
DTEND;TZID=America/New_York:20261114T143000
DTSTAMP:20261030T105929Z
CREATED:20260423T154634Z
LAST-MODIFIED:20261030T105929Z
UID:4645-1794646800-1794666600@www.nfnortheast.org
SUMMARY:Living Forward with NF – A community-focused symposium
DESCRIPTION:Ask the experts. Meet your community. Get hands-on. Living Forward with NF is a community-focused symposium hosted by NF Northeast in Albany on November 14 where NF1 and NF2 families talk with doctors outside the clinic\, share roundtable conversations\, and explore a hands-on Patient Learning Lab with therapy dogs\, music therapy\, and more.   \n_________________________________________________________________________________________ \nPROGRAM HIGHLIGHTS \nPatient Learning Lab featuring therapy dogs\, music therapy\, Double H Ranch\, and more!  \nAsk the experts featuring NF specialists from Albany Medical Center\, Dartmouth-Hitchcock Medical Center\, Columbia University Medical Center\, and Yale School of Medicine.  \nRoundtable discussions where you can visit the tables that matter most to you and talk directly with our specialists in a relaxed setting about cognitive and behavioral challenges\, medical and genetic concerns\, hearing loss communication strategies\, coping with anxiety and depression\, and navigating college and employment.  \nConnect with the NF Community.  Living with NF means a lot of questions\, and not many places to ask them. On Saturday\, November 14\, NF Northeast is bringing the answers\, and the community\, to you.  \n_________________________________________________________________________________________ \nEVENT DETAILS \nCost: Free – Includes breakfast and lunch \n(Limited travel stipends also available; applications welcomed and encouraged. Email Anne Patterson apatterson@nfnortheast.org)  \nDate: Saturday\, November 14\, 2026\nTime: 9:00 AM – 2:30 PM\nLocation: Hilton Garden Inn\, Albany Medical Center \nWho: NF1 and NF2 patients\, caregivers\, and family members  \nPlease note: This program is intended for ages 14 and older.  \nREGISTER HERE \n  \nGenerously sponsored by \n 
URL:https://www.nfnortheast.org/event/registration-now-open-living-forward-with-nf-mini-symposium-november-14-2026/
LOCATION:Hilton Garden Inn\, Albany Medical Center USS Albany Ballroom\, 62 New Scotland Avenue\, Albany\, NY\, 12208\, United States
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/Website-header-2.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T190000
DTEND;TZID=America/New_York:20261119T203000
DTSTAMP:20261023T215808Z
CREATED:20260420T213516Z
LAST-MODIFIED:20261023T215808Z
UID:4660-1795114800-1795120200@www.nfnortheast.org
SUMMARY:Navigating Stress and Cultivating Wellness During the Holidays
DESCRIPTION:The holiday season can bring additional stress\, especially for individuals and families navigating life with a rare condition such as NF1. \nJoin NF Northeast on Thursday\, November 19\, 2026\, for an educational session presented by Kristen Clark\, Patient Education Manager at Alexion Pharmaceuticals. \nThis session will explore the impact of stress\, practical strategies for managing it\, healthy habits that support overall wellness\, and ways to seek additional support. The evening will conclude with an engaging patient-led discussion. \nEvent Details \nDate: Thursday\, November 19\, 2026\nTime: 7:00–8:30 PM\nPresenter: Kristen Clark\, Patient Education Manager\, Alexion Pharmaceuticals \nJoin us for an opportunity to learn practical wellness strategies and connect with others in the NF community. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/navigating-stress-and-cultivating-wellness-during-the-holidays/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Nav-Stress-Graphic.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261121T090000
DTEND;TZID=America/New_York:20261121T100000
DTSTAMP:20261030T130501Z
CREATED:20260418T175140Z
LAST-MODIFIED:20261030T130501Z
UID:4613-1795251600-1795255200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - November
DESCRIPTION:NF patients and their families and friends are invited to join us on the morning of Saturday\, November 21st at 9:00 AM for a community-building virtual coffee chat! These chats are a wonderful opportunity to connect with others who understand the NF journey and have open\, casual conversations about whatever is on your mind. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-november/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-coffee-chat-nov.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T190000
DTEND;TZID=America/New_York:20261207T203000
DTSTAMP:20261023T215704Z
CREATED:20260416T215144Z
LAST-MODIFIED:20261023T215704Z
UID:4664-1796670000-1796675400@www.nfnortheast.org
SUMMARY:Navigating Sibling and Family Relationships While Living with NF1
DESCRIPTION:Navigating family relationships while living with a rare condition such as NF1 can present unique challenges and opportunities for connection. \nJoin NF Northeast on Monday\, December 7\, 2026\, for an educational session presented by Kristen Clark\, Patient Education Manager at Alexion Pharmaceuticals. \nThis session will explore ways to balance time and emotional support within families\, create shared activities that strengthen relationships\, and help teens and adults build meaningful connections that encourage social inclusion. \nThe evening will conclude with an engaging patient-led discussion. \nEvent Details \nDate: Monday\, December 7\, 2026\nTime: 7:00–8:30 PM\nPresenter: Kristen Clark\, Patient Education Manager\, Alexion Pharmaceuticals \nJoin us for an informative conversation about strengthening family connections and supporting one another while navigating life with NF1. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/navigating-sibling-and-family-relationships-while-living-with-nf1/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Sib-and-Fam-Graphic.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T190000
DTEND;TZID=America/New_York:20261215T200000
DTSTAMP:20261023T215958Z
CREATED:20260410T143607Z
LAST-MODIFIED:20261023T215958Z
UID:4616-1797361200-1797364800@www.nfnortheast.org
SUMMARY:NF Holiday Chat - December
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Monday\, December 15th at 7:00 PM for our special NF Holiday Chat! Come celebrate the season with others who understand the NF journey — share stories\, connect with the community\, and enjoy some holiday cheer together. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-holiday-chat-december/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Copy-of-NFNE-Community-Chat-FB-Event-Banners-1200-×-628-px-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270213T100000
DTEND;TZID=America/New_York:20270213T120000
DTSTAMP:20261028T190808Z
CREATED:20261028T190808Z
LAST-MODIFIED:20261028T190808Z
UID:4672-1802512800-1802520000@www.nfnortheast.org
SUMMARY:14th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 14th annual Cupid’s Chase 5K on Saturday\, February 13th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/20/2027 \nOnline registration ends on Thursday\, February 11th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from  4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \n\nEarly Bird (through 12/31) – $30\nStandard (1/1-2/7) – $35\nLate (2/8-2/12) – $40\nRace Day – $45\n\nNo Shirt Option:  Save $5 \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-3/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
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ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20261028T193507Z
CREATED:20261028T193313Z
LAST-MODIFIED:20261028T193507Z
UID:4675-1808611200-1808697599@www.nfnortheast.org
SUMMARY:Etape Loch Ness 2027 Cycling Event
DESCRIPTION:Ride the Scottish Highlands for NF Northeast!\nTake on an unforgettable cycling adventure at the Etape Loch Ness on Sunday\, April 25\, 2027! \nThis popular cycling event takes riders on a spectacular journey through the Scottish Highlands\, featuring breathtaking scenery around Loch Ness. Whether you’re an experienced cyclist or looking for your next big challenge\, this is an opportunity to combine an incredible riding experience with a meaningful cause. \nEvent Details\n\nEvent: Etape Loch Ness\nDate: Sunday\, April 25\, 2027\nLocation: Loch Ness and the Scottish Highlands\, Scotland\nFundraising Minimum: $750 per charity cyclist\nCharity Entries: Limited availability through NF Northeast\n\nThe event is sold out to general participants\, but NF Northeast has charity entries available! \nReady to Take on the Challenge?\nSecure your charity entry and turn your cycling adventure into an opportunity to make a difference.  Contact ktrainor@nfnortheast.org for more information.
URL:https://www.nfnortheast.org/event/etape-loch-ness-2027/
LOCATION:Bught Park\, Inverness\, Scotland\, United Kingdom
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ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
END:VCALENDAR