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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20251118T120000
DTEND;TZID=America/New_York:20251118T130000
DTSTAMP:20260404T071055
CREATED:20251001T200102Z
LAST-MODIFIED:20251001T201700Z
UID:3421-1763467200-1763470800@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Dr. Michele Distefano\, AUD\, CCC/A: Hearing Loss 101 and Coping Strategies
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nHearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis\, schwannomatosis\, and the general population in different ways. Dr. Michele DiStefano\, an expert in audiology from the Center for Hearing and Communication\, will be talking about the signs and symptoms of hearing loss and effective coping strategies. \nRegister Here  \n\nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-dr-michele-distefano-aud-ccc-a-hearing-loss-101-and-coping-strategies/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2025/10/November-2025-WEB1-1-1-e1759347819475.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T120000
DTEND;TZID=America/New_York:20251209T130000
DTSTAMP:20260404T071055
CREATED:20251001T201256Z
LAST-MODIFIED:20251001T201954Z
UID:3429-1765281600-1765285200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Dr. Karin Walsh: Developmental\, Cognitive\, and Social-Emotional Challenges in NF1
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nAre you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh\, who will discuss developmental\, cognitive\, and social-emotional challenges in NF1\, from childhood to young adulthood. She will share resources for families to seek professional guidance in navigating these challenges. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12 pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-dr-karin-walsh-developmental-cognitive-and-social-emotional-challenges-in-nf1/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/webp:https://www.nfnortheast.org/wp-content/uploads/2025/10/December-2025-WEB1.webp
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260404T071055
CREATED:20251201T213053Z
LAST-MODIFIED:20251222T195942Z
UID:3293-1766084400-1766088000@www.nfnortheast.org
SUMMARY:NF Holiday Community Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Thursday\, December 18th for a virtual\, holiday community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-december25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2025/09/December-25-holiday2-1.jpg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T120000
DTEND;TZID=America/New_York:20260120T130000
DTSTAMP:20260404T071055
CREATED:20250422T190007Z
LAST-MODIFIED:20260128T172022Z
UID:3759-1768910400-1768914000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways: NF Collective Highlights
DESCRIPTION:Join us for our Tuesday Takeaways\, a one-hour educational lunchtime session\, geared towards sharing relevant updates and educational materials with our NF community. These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \n\nAre you familiar with the NF Collective? Join us to learn more about this collaborative network of neurofibromatosis (NF) organizations. The NF Collective is committed to enhancing the quality of life for individuals affected by NF and their families by providing resources\, support services\, and information about qualified NF healthcare providers. \nREGISTER HERE  \n\n 
URL:https://www.nfnortheast.org/event/tuesday-takeaways-nf-collective-highlights/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2025/12/January-2026-WEB3.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T190000
DTEND;TZID=America/New_York:20260122T200000
DTSTAMP:20260404T071055
CREATED:20231222T195936Z
LAST-MODIFIED:20260204T143346Z
UID:3820-1769108400-1769112000@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm EST the evening of Thursday\, January 22nd for a virtual community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-january/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/November-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260214T090000
DTEND;TZID=America/New_York:20260214T100000
DTSTAMP:20260404T071055
CREATED:20260106T232134Z
LAST-MODIFIED:20260128T172623Z
UID:3825-1771059600-1771063200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, February 14th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-february/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/October-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260214T100000
DTEND;TZID=America/New_York:20260214T120000
DTSTAMP:20260404T071055
CREATED:20260107T232211Z
LAST-MODIFIED:20260128T172503Z
UID:3696-1771063200-1771070400@www.nfnortheast.org
SUMMARY:13th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 13th annual Cupid’s Chase 5K on Saturday\, February 8th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/20/2026 \nOnline registration ends on Thursday\, February 12th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from  4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \n\nEarly Bird (through 12/31) – $30\nStandard (1/1-2/7) – $35\nLate (2/8-2/12) – $40\nRace Day – $45\n\nNo Shirt Option:  Save $5 \nCourse Map
URL:https://www.nfnortheast.org/event/13th-annual-cupids-chase-5k/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/12/WEB-Event-Page-Featured-Images.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260222T140000
DTEND;TZID=America/New_York:20260222T160000
DTSTAMP:20260404T071055
CREATED:20260205T183628Z
LAST-MODIFIED:20260205T183628Z
UID:4170-1771768800-1771776000@www.nfnortheast.org
SUMMARY:Family Bowling Event - Connecticut
DESCRIPTION:We’re thrilled to bring the Hartford area NF Northeast community together for an afternoon of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \n$13 per bowler (includes shoes) – pay at the door. Food and drink will be available for purchase.  RSVP encouraged. \nRSVP HERE.
URL:https://www.nfnortheast.org/event/family-bowling-connecticut/
LOCATION:Spare Time\, 177 Farmington Ave\, Bristol\, CT\, 06010\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/02/HartfordBowlingbanner.jpg
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T190000
DTEND;TZID=America/New_York:20260303T200000
DTSTAMP:20260404T071055
CREATED:20251122T161744Z
LAST-MODIFIED:20251226T165900Z
UID:3829-1772564400-1772568000@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 3rd at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-march/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/December-22-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260305T120000
DTEND;TZID=America/New_York:20260305T130000
DTSTAMP:20260404T071055
CREATED:20260210T184217Z
LAST-MODIFIED:20260210T184217Z
UID:4199-1772712000-1772715600@www.nfnortheast.org
SUMMARY:NF Summer Camps Information Session
DESCRIPTION:It’s time to start planning camps and activities for this summer! Join us for an information session that will highlight Double H Ranch in the Adirondack Region of NY\, The Woodlands Camp in PA\, and more! Representatives from each location will be sharing details about the unique programs that will be offered this summer! \nRegister Here
URL:https://www.nfnortheast.org/event/nf-summer-camps-information-session26/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Summer-Camp-Info-Session-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260305T183000
DTEND;TZID=America/New_York:20260305T200000
DTSTAMP:20260404T071055
CREATED:20251122T155804Z
LAST-MODIFIED:20260306T185023Z
UID:3783-1772735400-1772740800@www.nfnortheast.org
SUMMARY:Stronger Together in Schwannomatosis
DESCRIPTION:NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being\, pain management\, and understanding in-depth genetics for individuals living with schwannomatosis. Join us for one or all of these engaging discussions. \n\n\nSession 1: Tuesday\, January 27th\, 6:30-8:00 pm EST\n Living Well with Schwannomatosis\, Amanda Bergner\, MS\, LCGC\nAmanda will discuss the importance of well-being and mental/emotional health when living with a rare genetic condition such as SWN. The focus will be on coping with the diagnostic odyssey that often occurs with SWN. Discussions will focus on monitoring well-being\, relationships\, and quality of life.\n\n\nPAST EVENT \n\n\nSession 2: Tuesday\, February 3rd\, 6:30-8:00 pm EST\n Understanding Pain and Coping Strategies in SWN\, Frank Buono\, PhD\n               Dr. Buono’s session will be geared towards pain management in schwannomatosis. One of the top concerns of most individuals living with SWN is their pain. Join us for this interactive session with an expert and your peers to learn more about pain management guidelines and strategies.\n\nPAST EVENT \n\n\n\nSession 3: Thursday\, March 5th\, 6:30-8:00 pm EST\n In-depth Schwannomatosis Genetics\, Alicia Gomes\, MS\, CGS\n          Alicia will discuss the basics of genetics in schwannomatosis\, inheritance\, and the different variants. Receiving a diagnosis of schwannomatosis (SWN) and/or managing a complication from SWN can result in a range of emotions and medical interventions. Tune in to learn more about the genetics involved.\n\nPAST EVENT
URL:https://www.nfnortheast.org/event/stronger-together-in-schwannomatosis/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/thumbnail_SWN-SOCIAL-MEDIA-IDEAS3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T173000
DTEND;TZID=America/New_York:20260315T193000
DTSTAMP:20260404T071055
CREATED:20260215T230542Z
LAST-MODIFIED:20260306T185432Z
UID:2731-1773595800-1773603000@www.nfnortheast.org
SUMMARY:Community Bowling Night - Boston
DESCRIPTION:We’re thrilled to bring the Rhode Island and Boston area NF Northeast community together for a night of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \nThis event is free to attend – RSVP encouraged.  Bowling and shoes are complimentary\, thanks to the generosity of Kings Bowling. Food and drink will be available for purchase.\n\nRSVP Here
URL:https://www.nfnortheast.org/event/family-bowling-night-boston/
LOCATION:Kings Dedham – Legacy Place\, 600 Legacy Place\, Dedham\, MA\, 02026
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Greater-Boston-7.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260328T080000
DTEND;TZID=America/New_York:20260328T160000
DTSTAMP:20260404T071055
CREATED:20260218T000530Z
LAST-MODIFIED:20260218T222343Z
UID:4106-1774684800-1774713600@www.nfnortheast.org
SUMMARY:Journey in Focus: A Retreat for Patients with NF1 in the Greater Philadelphia area
DESCRIPTION:Journey in Focus: A Retreat for Patients with NF1 in the Greater Philadelphia area \nHosted by NF Northeast \nSaturday\, March 28\, 2026\n8:00 AM – 4:00 PM \nThe Desmond Hotel Malvern\n1 Liberty Blvd\, Malvern\, PA \n(please note: Malvern\, PA is located approximately 25 miles NW of Philadelphia) \n What Is Journey in Focus? \nA one-day retreat designed to support individuals and families affected by Neurofibromatosis Type 1 (NF1) through education\, connection\, and shared experience. The program centers patient and care-partner voices and provides practical tools\, meaningful dialogue\, and opportunities to build community. \n Program Highlights \n\nUpdates in NF1 Care Management\nLearn about current care strategies\, emerging research\, and ongoing and upcoming clinical trials.\nPatient Learning Lab\nAn interactive space to gain practical tools and discuss real-life challenges of living with NF1.\nForums for Every Journey\nDedicated discussion groups for adults with NF1\, teens and young adults\, and care-partners.\nTopics That Matter\nSessions on developmental and social/emotional challenges\, mental health and wellness\, family planning\, and navigating school\, work\, and relationships.\n\n Connect\, Learn\, You’re Not Alone! \nREGISTER HERE or click on this link http://weblink.donorperfect.com/JourneyinFocusforNF1 \nFree to Attend\, Must Register  \nSpace is Limited! \nYou may also scan this QR code  \nA limited number of stipends are available for patients living in the Northeast region to offset the cost of travel and lodging. If you do not live in the Northeast\, you may join a waitlist\, and should stipends become available\, we will notify you. Please email Anne Patterson at apatterson@nfnortheast.org to request a stipend. Questions? Call 781-272-9936. *This retreat is for ages 14 years and up \nGenerously Sponsored by: Alexion Pharmaceuticals and SpringWorks Therapeutics
URL:https://www.nfnortheast.org/event/journey-in-focus-a-retreat-for-patients-with-nf1/
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/01/Untitled-design-3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T090000
DTEND;TZID=America/New_York:20260418T100000
DTSTAMP:20260404T071055
CREATED:20251121T162713Z
LAST-MODIFIED:20251226T165130Z
UID:3834-1776502800-1776506400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 18th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-april/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/May-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260404T071055
CREATED:20251001T170908Z
LAST-MODIFIED:20251124T150934Z
UID:3394-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Westchester County\, NY
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-westchester-county-ny-2026/
LOCATION:FDR State Park\, 2957 Crompond Rd\, Yorktown Heights\, NY\, 10598
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Westchester-NY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260404T071055
CREATED:20251006T125608Z
LAST-MODIFIED:20260220T123642Z
UID:3439-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Hartford\, CT
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-hartford-ct-2026/
LOCATION:Dunkin’ Park\, 1214 Main Street\, Hartford\, CT\, 06103\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Hartford-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T090000
DTEND;TZID=America/New_York:20260503T120000
DTSTAMP:20260404T071055
CREATED:20251027T153058Z
LAST-MODIFIED:20251124T150700Z
UID:3406-1777798800-1777809600@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Philadelphia
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-philadelphia-2026/
LOCATION:Wilson Farm Park\, 500 Lee Road\, Chesterbrook\, PA\, 19087
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Greater-Philadelphia.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T090000
DTEND;TZID=America/New_York:20260509T120000
DTSTAMP:20260404T071055
CREATED:20251027T154538Z
LAST-MODIFIED:20251223T140216Z
UID:3643-1778317200-1778328000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Rhode Island
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS 
URL:https://www.nfnortheast.org/event/steps2cure-nf-rhode-island/
LOCATION:Colt State Park\, Colt State Park\, Route 114\, Bristol\, RI\, 02809
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Rhode-Island.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T150000
DTSTAMP:20260404T071055
CREATED:20251001T161115Z
LAST-MODIFIED:20251226T165705Z
UID:3399-1778328000-1778338800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Central New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-central-new-york-2026/
LOCATION:Forest Park\, 21 Ripley Rd\, Camden\, NY\, 13316\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Camden.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T190000
DTEND;TZID=America/New_York:20260511T200000
DTSTAMP:20260404T071055
CREATED:20251001T164557Z
LAST-MODIFIED:20260213T200313Z
UID:3837-1778526000-1778529600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, May 11th at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-may/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/May-20261.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20260404T071055
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260404T071055
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260525
DTSTAMP:20260404T071055
CREATED:20251014T221001Z
LAST-MODIFIED:20260128T172915Z
UID:3850-1779408000-1779667199@www.nfnortheast.org
SUMMARY:NF Northeast at the Buffalo Marathon Weekend
DESCRIPTION:Run (or Walk) for a Purpose – Buffalo Marathon Weekend\nMay 23–24\, 2026 | Buffalo\, NY \nJoin NF Northeast for a weekend of running\, walking\, and community at the Buffalo Marathon Weekend. Your participation supports individuals and families affected by Neurofibromatosis (NF). \nHow to Participate\n\nRegister for your race first on the official Buffalo Marathon site: Buffalo Marathon Registration\nComplete the NF Northeast Google Form: NF Northeast Form\nOptional fundraising: Share our Qgiv donation page: Donate to NF Northeast. No fundraising minimum required.\n\nEvents: 5K • Half Marathon • Full Marathon\nWalkers welcome • Kids events available \nShare Your Story: Send us your “Why I Run for NF” story and we’ll do our best to feature it on our website or social media!
URL:https://www.nfnortheast.org/event/event-buffalo-marathon-weekend-2026/
LOCATION:Buffalo\, New York
CATEGORIES:Awareness,Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/01/Buffalo-Marathon-Facebook-Post1.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260404T071055
CREATED:20251027T154537Z
LAST-MODIFIED:20260213T225914Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260404T071055
CREATED:20251027T153331Z
LAST-MODIFIED:20251124T150757Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260404T071055
CREATED:20251027T154308Z
LAST-MODIFIED:20251124T150517Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T090000
DTEND;TZID=America/New_York:20260914T170000
DTSTAMP:20260404T071055
CREATED:20260212T162533Z
LAST-MODIFIED:20260306T185215Z
UID:4299-1789376400-1789405200@www.nfnortheast.org
SUMMARY:2026 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 14th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nRegistration \n\n\n\n\n$200 – Individual \n$800 – Foursome \nRegistration Coming Soon! \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, and a buffet supper following golf. \n\n  \n  \n 
URL:https://www.nfnortheast.org/event/2026-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/03/Greater-Boston-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260404T071055
CREATED:20260211T172249Z
LAST-MODIFIED:20260218T223338Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T080000
DTEND;TZID=America/New_York:20261215T170000
DTSTAMP:20260404T071055
CREATED:20241118T171858Z
LAST-MODIFIED:20250603T145918Z
UID:1631-1797321600-1797354000@www.nfnortheast.org
SUMMARY:Previous Events
DESCRIPTION:Click Here to View Previous Events
URL:https://www.nfnortheast.org/event/previous-events/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/11/White-Background.png
END:VEVENT
END:VCALENDAR