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X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20260503T090000
DTEND;TZID=America/New_York:20260503T120000
DTSTAMP:20260404T070325
CREATED:20251027T153058Z
LAST-MODIFIED:20251124T150700Z
UID:3406-1777798800-1777809600@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Philadelphia
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-philadelphia-2026/
LOCATION:Wilson Farm Park\, 500 Lee Road\, Chesterbrook\, PA\, 19087
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Greater-Philadelphia.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T090000
DTEND;TZID=America/New_York:20260509T120000
DTSTAMP:20260404T070325
CREATED:20251027T154538Z
LAST-MODIFIED:20251223T140216Z
UID:3643-1778317200-1778328000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Rhode Island
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS 
URL:https://www.nfnortheast.org/event/steps2cure-nf-rhode-island/
LOCATION:Colt State Park\, Colt State Park\, Route 114\, Bristol\, RI\, 02809
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Rhode-Island.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T150000
DTSTAMP:20260404T070325
CREATED:20251001T161115Z
LAST-MODIFIED:20251226T165705Z
UID:3399-1778328000-1778338800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Central New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-central-new-york-2026/
LOCATION:Forest Park\, 21 Ripley Rd\, Camden\, NY\, 13316\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Camden.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T190000
DTEND;TZID=America/New_York:20260511T200000
DTSTAMP:20260404T070325
CREATED:20251001T164557Z
LAST-MODIFIED:20260213T200313Z
UID:3837-1778526000-1778529600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, May 11th at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-may/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/May-20261.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20260404T070325
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260404T070325
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260525
DTSTAMP:20260404T070325
CREATED:20251014T221001Z
LAST-MODIFIED:20260128T172915Z
UID:3850-1779408000-1779667199@www.nfnortheast.org
SUMMARY:NF Northeast at the Buffalo Marathon Weekend
DESCRIPTION:Run (or Walk) for a Purpose – Buffalo Marathon Weekend\nMay 23–24\, 2026 | Buffalo\, NY \nJoin NF Northeast for a weekend of running\, walking\, and community at the Buffalo Marathon Weekend. Your participation supports individuals and families affected by Neurofibromatosis (NF). \nHow to Participate\n\nRegister for your race first on the official Buffalo Marathon site: Buffalo Marathon Registration\nComplete the NF Northeast Google Form: NF Northeast Form\nOptional fundraising: Share our Qgiv donation page: Donate to NF Northeast. No fundraising minimum required.\n\nEvents: 5K • Half Marathon • Full Marathon\nWalkers welcome • Kids events available \nShare Your Story: Send us your “Why I Run for NF” story and we’ll do our best to feature it on our website or social media!
URL:https://www.nfnortheast.org/event/event-buffalo-marathon-weekend-2026/
LOCATION:Buffalo\, New York
CATEGORIES:Awareness,Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/01/Buffalo-Marathon-Facebook-Post1.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260404T070325
CREATED:20251027T154537Z
LAST-MODIFIED:20260213T225914Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260404T070325
CREATED:20251027T153331Z
LAST-MODIFIED:20251124T150757Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260404T070325
CREATED:20251027T154308Z
LAST-MODIFIED:20251124T150517Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T090000
DTEND;TZID=America/New_York:20260914T170000
DTSTAMP:20260404T070325
CREATED:20260212T162533Z
LAST-MODIFIED:20260306T185215Z
UID:4299-1789376400-1789405200@www.nfnortheast.org
SUMMARY:2026 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 14th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nRegistration \n\n\n\n\n$200 – Individual \n$800 – Foursome \nRegistration Coming Soon! \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, and a buffet supper following golf. \n\n  \n  \n 
URL:https://www.nfnortheast.org/event/2026-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/03/Greater-Boston-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260404T070325
CREATED:20260211T172249Z
LAST-MODIFIED:20260218T223338Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T080000
DTEND;TZID=America/New_York:20261215T170000
DTSTAMP:20260404T070325
CREATED:20241118T171858Z
LAST-MODIFIED:20250603T145918Z
UID:1631-1797321600-1797354000@www.nfnortheast.org
SUMMARY:Previous Events
DESCRIPTION:Click Here to View Previous Events
URL:https://www.nfnortheast.org/event/previous-events/
LOCATION:Massachusetts
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/11/White-Background.png
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