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X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T190000
DTEND;TZID=America/New_York:20260511T200000
DTSTAMP:20260429T150447Z
CREATED:20251001T164557Z
LAST-MODIFIED:20260429T150447Z
UID:3837-1778526000-1778529600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Monday\, May 11th\, for a virtual NF chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-may/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/May-20261.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20251124T151007Z
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260203T235232Z
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260525
DTSTAMP:20260128T172915Z
CREATED:20251014T221001Z
LAST-MODIFIED:20260128T172915Z
UID:3850-1779408000-1779667199@www.nfnortheast.org
SUMMARY:NF Northeast at the Buffalo Marathon Weekend
DESCRIPTION:Run (or Walk) for a Purpose – Buffalo Marathon Weekend\nMay 23–24\, 2026 | Buffalo\, NY \nJoin NF Northeast for a weekend of running\, walking\, and community at the Buffalo Marathon Weekend. Your participation supports individuals and families affected by Neurofibromatosis (NF). \nHow to Participate\n\nRegister for your race first on the official Buffalo Marathon site: Buffalo Marathon Registration\nComplete the NF Northeast Google Form: NF Northeast Form\nOptional fundraising: Share our Qgiv donation page: Donate to NF Northeast. No fundraising minimum required.\n\nEvents: 5K • Half Marathon • Full Marathon\nWalkers welcome • Kids events available \nShare Your Story: Send us your “Why I Run for NF” story and we’ll do our best to feature it on our website or social media!
URL:https://www.nfnortheast.org/event/event-buffalo-marathon-weekend-2026/
LOCATION:Buffalo\, New York
CATEGORIES:Awareness,Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/01/Buffalo-Marathon-Facebook-Post1.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260524T070000
DTEND;TZID=America/New_York:20260524T070000
DTSTAMP:20260521T204437Z
CREATED:20260415T201033Z
LAST-MODIFIED:20260521T204437Z
UID:4374-1779606000-1779606000@www.nfnortheast.org
SUMMARY:Boston's Run to Remember
DESCRIPTION:Run Boston’s Run to Remember for NF Northeast! \nTake on the Boston’s Run to Remember Half Marathon or 5-Miler and make your miles matter. This inspiring race honors fallen first responders while giving you the chance to support NF Northeast. \nWhether you’re running 5 miles or going the full 13.1\, you can be part of our community and help raise awareness for those affected by neurofibromatosis (NF). \nInterested in supporting the cause? Donations can be made here:\nhttps://secure.qgiv.com/event/bostonsruntoremember/ \nReady to run for a cause? Sign up today and be part of something bigger! \nFor a discount code\, contact Kim Trainor at ktrainor@nfnortheast.org
URL:https://www.nfnortheast.org/event/bostons-run-to-remember-2/
LOCATION:Seaport Boston\, Seaport Blvd\, Boston\, Massachusetts
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/03/Screenshot-2025-03-31-at-19-20-26-r2r_logo_23.png-PNG-Image-200-×-182-pixels.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260609T140752Z
CREATED:20260119T164537Z
LAST-MODIFIED:20260609T140752Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260609T140829Z
CREATED:20260117T163331Z
LAST-MODIFIED:20260609T140829Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260609T140808Z
CREATED:20260118T164308Z
LAST-MODIFIED:20260609T140808Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T090000
DTEND;TZID=America/New_York:20260606T100000
DTSTAMP:20260609T140730Z
CREATED:20260101T152337Z
LAST-MODIFIED:20260609T140730Z
UID:4449-1780736400-1780740000@www.nfnortheast.org
SUMMARY:NF Coffee Chat - June
DESCRIPTION:NF patients and families are invited to join us at 9:00 AM on Saturday\, June 6th\, for a virtual NF coffee chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-june/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/05/june-2026.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260707T190000
DTEND;TZID=America/New_York:20260707T200000
DTSTAMP:20260709T144031Z
CREATED:20260423T142427Z
LAST-MODIFIED:20260709T144031Z
UID:4453-1783450800-1783454400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - July
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, July 7th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-july/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/05/July-2026.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260720T183000
DTEND;TZID=America/New_York:20260720T200000
DTSTAMP:20260721T144428Z
CREATED:20250601T184806Z
LAST-MODIFIED:20260721T144428Z
UID:4474-1784572200-1784577600@www.nfnortheast.org
SUMMARY:Stronger Together in Schwannomatosis: Restorative Sound Meditation with Gabrielle Saunders
DESCRIPTION:Join us for a deeply restorative virtual sound meditation led by Gabrielle Saunders\, using crystal alchemy bowls to quiet the mind\, regulate the nervous system\, and ease stress. \nGet cozy\, dim the lights\, and give yourself an hour of intentional stillness and care. No experience necessary — simply come as you are. \n📅 Date: Monday\, July 20\, 2026 🕡 Time: 6:30 – 8:00 PM EST 📍 Location: Virtual (Zoom) \nRegister today using the link below. We hope you’ll join us for this peaceful evening of connection and care. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/stronger-together-in-schwannomatosis-restorative-sound-meditation-with-gabrielle-saunders/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/SWN_Summer_Session_16x9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260804T190000
DTEND;TZID=America/New_York:20260804T200000
DTSTAMP:20260812T152343Z
CREATED:20250529T152300Z
LAST-MODIFIED:20260812T152343Z
UID:4506-1785870000-1785873600@www.nfnortheast.org
SUMMARY:NF1 Community Education Series: Back to School
DESCRIPTION:NF Northeast invites you to join our Back to School program\, part of our NF1 Community Education Series sponsored by Alexion. \nLed by Alexion Patient Education Manager Mike Sager\, this free virtual session covers how to navigate the new school year for those affected by rare disease\, including how to collaborate with schools and avoid common\, frustrating obstacles. \nTuesday\, August 4th at 7:00 PM EST\nVirtual on Zoom \nRegister today using the link below or scan the QR code on the flyer.\nREGISTER HERE \nQuestions? Reach out to us anytime at nfnortheast.org. This program may be available in Spanish upon request.
URL:https://www.nfnortheast.org/event/nf1-community-education-series-back-to-school/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/Alexion_Back_to_School.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T183000
DTEND;TZID=America/New_York:20260810T203000
DTSTAMP:20260812T152249Z
CREATED:20250530T155250Z
LAST-MODIFIED:20260812T152249Z
UID:4536-1786386600-1786393800@www.nfnortheast.org
SUMMARY:Pain in Schwannomatosis (SWN) - A Holistic Approach to Pain Care
DESCRIPTION:Join us for a discussion with Dr. Rebecca Brown\, Director of the UAB NF Clinic\, and Dr. Brian Mayrsohn\, Founder of Maywell Pain Management. They’ll explore a holistic\, innovative approach to comprehensive pain management for individuals living with schwannomatosis (SWN). \nMonday\, August 10\, 2026 \n6:30 PM to 8:30 PM EST \nVirtual Event (Zoom) \nRegister Here
URL:https://www.nfnortheast.org/event/pain-in-schwannomatosis-swn-a-holistic-approach-to-pain-care/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T190000
DTEND;TZID=America/New_York:20260811T200000
DTSTAMP:20260812T152417Z
CREATED:20250513T154450Z
LAST-MODIFIED:20260812T152417Z
UID:4456-1786474800-1786478400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - August
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, August 11th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats!  \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-august/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/August-2026.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260816
DTEND;VALUE=DATE:20260817
DTSTAMP:20260818T144614Z
CREATED:20250510T202006Z
LAST-MODIFIED:20260818T144614Z
UID:4376-1786838400-1786924799@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2026
DESCRIPTION:NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday\, August 16\, 2026. \nIn order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1500 fundraising minimum. Bib numbers are limited\, so act fast to claim your spot for this iconic race! \nFor more information and to register to run for NF Northeast please visit the 2026 ASICS Falmouth Road Race registration site. For more information on the race\, visit: https://falmouthroadrace.com/ \n 
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2026/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/ChatGPT-Image-May-15-2026-04_00_53-PM.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T180000
DTEND;TZID=America/New_York:20260910T190000
DTSTAMP:20260915T144613Z
CREATED:20250509T135128Z
LAST-MODIFIED:20260915T144613Z
UID:4557-1789063200-1789066800@www.nfnortheast.org
SUMMARY:The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis
DESCRIPTION:Thursday\, September 10 6:00 PM ET \nJoin NF Northeast for an educational presentation on The STARFISH Clinical Trial for Pain Relief in Non-NF2 Related Schwannomatosis\, presented by Scott Plotkin\, MD\, and Vanessa Merker\, PhD. \nThis program will provide an overview of the STARFISH clinical trial\, including its goals and the latest information on research focused on pain relief for individuals with non-NF2 related schwannomatosis. \nRegister Here
URL:https://www.nfnortheast.org/event/the-starfish-clinical-trial-for-pain-relief-in-non-nf2-related-schwannomatosis/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/07/SWN-program-social-media-.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260912T090000
DTEND;TZID=America/New_York:20260912T100000
DTSTAMP:20260915T144444Z
CREATED:20250512T172855Z
LAST-MODIFIED:20260915T144444Z
UID:4607-1789203600-1789207200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - September
DESCRIPTION:NF patients and their families and friends are invited to join us the morning of Saturday\, September 12th at 9:00 AM for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-september/
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-coffee-chat.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T090000
DTEND;TZID=America/New_York:20260914T170000
DTSTAMP:20260915T144643Z
CREATED:20250508T152533Z
LAST-MODIFIED:20260915T144643Z
UID:4299-1789376400-1789405200@www.nfnortheast.org
SUMMARY:2026 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 14th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nRegistration \n\n\n\n\n$200 – Individual \n$800 – Foursome \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, and a buffet supper following golf. \nRegister for Fall Golf Classic \n\n  \nSponsorship Information \nPresenting Sponsor – $5\,000 \n\nCompany name as Presenting Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nThree (3) tee box sponsorships\nAdmission for eight (8) golfers\nRecognition on website/marketing materials\nSpeaking opportunity during dinner program\n\n\nPlatinum Sponsor – $3\,000 \n\nCompany name as Platinum Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nTwo (2) tee box sponsorships\nAdmission for four (4) golfers at tournament\nRecognition during dinner program\nCompany name on event signage\n\n\nGold Sponsor – $1\,500 \n\nCompany name as Gold Sponsor on welcome sign displayed at event\nCompany’s collateral materials displayed*\nTwo (2) tee box sponsorships\nRecognition during dinner program\nCompany name on event signage\n\n\nSilver Sponsor – $750 \n\nCompany name as Silver Sponsor on welcome sign displayed at event\nOne (1) tee box sponsorship\nRecognition during dinner program\nCompany name on event signage\n\n\nGolf Cart Sponsor – $500 \n\nCompany name & website on all golf carts\n\n\nTee Sponsor – $150 \n\nOne (1) tee box sponsorship\n\n*All collateral subject to approval by NF Northeast \n\nPlease contact Lauren Gilbert for more information on making an impact through event sponsorship.
URL:https://www.nfnortheast.org/event/2026-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/03/Greater-Boston-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260721T144701Z
CREATED:20260512T162249Z
LAST-MODIFIED:20260721T144701Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T083000
DTEND;TZID=America/New_York:20260926T160000
DTSTAMP:20260708T181739Z
CREATED:20260502T184315Z
LAST-MODIFIED:20260708T181739Z
UID:4464-1790411400-1790438400@www.nfnortheast.org
SUMMARY:Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners
DESCRIPTION:Mark your calendars! Beyond Sound 2026 is an empowering\, in-person NF2 workshop\, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. \nREGISTER HERE 
URL:https://www.nfnortheast.org/event/beyond-sound-2026-a-day-for-nf2-swn-patients-care-partners/
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/05/BEYOND-SOUND-2026-SAVE-THE-DATE-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261004T074500
DTEND;TZID=America/New_York:20261004T120000
DTSTAMP:20260818T144527Z
CREATED:20260422T214336Z
LAST-MODIFIED:20260818T144527Z
UID:4622-1791099900-1791115200@www.nfnortheast.org
SUMMARY:Maine Marathon\, Half Marathon\, and Relay
DESCRIPTION:Maine Marathon – Run for NF Northeast \nJoin Team NF Northeast at the Maine Marathon\, Half Marathon\, and Relay on October 4\, 2026\, in Portland\, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. \nLimited bibs available — contact ktrainor@nfnortheast.org for more information
URL:https://www.nfnortheast.org/event/maine-marathon-half-marathon-and-relay/
LOCATION:Pedro Field\, 55 Baxter Boulevard\, Portland\, ME\, United States
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/webp:https://www.nfnortheast.org/wp-content/uploads/2025/06/MM2025-Logo-800.webp
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261006T190000
DTEND;TZID=America/New_York:20261006T200000
DTSTAMP:20260814T175136Z
CREATED:20260426T174511Z
LAST-MODIFIED:20260814T175136Z
UID:4610-1791313200-1791316800@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Tuesday\, October 6th at 7:00 PM for a community-building virtual chat! These are fantastic opportunities to connect with others affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-october-3/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-Community-chat.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261014T190000
DTEND;TZID=America/New_York:20261014T200000
DTSTAMP:20260624T152241Z
CREATED:20260424T145822Z
LAST-MODIFIED:20260624T152241Z
UID:4501-1792004400-1792008000@www.nfnortheast.org
SUMMARY:NF1 Community Education Series: Career Readiness
DESCRIPTION:NF Northeast invites you to join our Career Readiness program\, part of our NF1 Community Education Series sponsored by Alexion. \nLed by Alexion Patient Education Manager Kristen Clark\, this free virtual session covers resume writing\, interview preparation\, and job search essentials\, including dos and don’ts and advice for navigating common interview questions. \nWednesday\, October 14th at 7:00 PM EST\nVirtual on Zoom \nRegister today using the link below or scan the QR code on the flyer.\nREGISTER HERE \nQuestions? Reach out to us anytime at nfnortheast.org. This program may be available in Spanish upon request.
URL:https://www.nfnortheast.org/event/nf1-community-education-series-career-readiness/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/Alexion_Career_Readiness.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261031T100000
DTEND;TZID=America/New_York:20261101T100000
DTSTAMP:20260818T144413Z
CREATED:20260422T131959Z
LAST-MODIFIED:20260818T144413Z
UID:4601-1793440800-1793527200@www.nfnortheast.org
SUMMARY:Cambridge 5K & Half Marathon
DESCRIPTION:Join Team NF Northeast for the Cambridge 5K & Half Marathon and turn your miles into meaningful support for individuals and families affected by neurofibromatosis (NF). \nWhether you’re an experienced runner tackling the Half Marathon\, looking for a fun and fast 5K\, or ready to take on both events\, you’ll be part of a community committed to advancing research\, increasing awareness\, and supporting those living with NF. \nAs an NF Northeast charity runner\, you’ll receive fundraising support\, race-day encouragement\, and the opportunity to make a direct impact while participating in one of New England’s premier running events. \nChoose your distance\, set your goal\, and join us in Cambridge for an unforgettable race weekend. \nFor more information\, contact Kim Trainor at ktrainor@nfnortheast.org \nLink to register:  https://runsignup.com/Race/MA/Cambridge/CambridgeHalfMarathon
URL:https://www.nfnortheast.org/event/cambridge-half-marathon-2/
LOCATION:CambridgeSide Galleria\, 100 Cambridgeside Pl\, Cambridge\, Massachusetts
CATEGORIES:Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Untitled-design1-e1786714468149.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261121T090000
DTEND;TZID=America/New_York:20261121T100000
DTSTAMP:20260814T175639Z
CREATED:20260420T175140Z
LAST-MODIFIED:20260814T175639Z
UID:4613-1795251600-1795255200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - November
DESCRIPTION:NF patients and their families and friends are invited to join us the morning of Friday\, November 21st at 9:00 AM for a community-building virtual coffee chat! These chats are a wonderful opportunity to connect with others who understand the NF journey and have open\, casual conversations about whatever is on your mind. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-november/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-coffee-chat-nov.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T080000
DTEND;TZID=America/New_York:20261215T170000
DTSTAMP:20250603T145918Z
CREATED:20241118T171858Z
LAST-MODIFIED:20250603T145918Z
UID:1631-1797321600-1797354000@www.nfnortheast.org
SUMMARY:Previous Events
DESCRIPTION:Click Here to View Previous Events
URL:https://www.nfnortheast.org/event/previous-events/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/11/White-Background.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T190000
DTEND;TZID=America/New_York:20261215T200000
DTSTAMP:20260818T144150Z
CREATED:20260418T143607Z
LAST-MODIFIED:20260818T144150Z
UID:4616-1797361200-1797364800@www.nfnortheast.org
SUMMARY:NF Holiday Chat - December
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Monday\, December 15th at 7:00 PM for our special NF Holiday Chat! Come celebrate the season with others who understand the NF journey — share stories\, connect with the community\, and enjoy some holiday cheer together. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-holiday-chat-december/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Copy-of-NFNE-Community-Chat-FB-Event-Banners-1200-×-628-px-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
END:VCALENDAR