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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241008T120000
DTEND;TZID=America/New_York:20241008T130000
DTSTAMP:20260404T104835
CREATED:20240821T151119Z
LAST-MODIFIED:20241009T151344Z
UID:2313-1728388800-1728392400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the third session of our Fall 2024 Tuesday Takeaways series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will share helpful resources and strategies to use when advocating for those we care for while engaging with their medical team and beyond. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/October-1-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241012T090000
DTEND;TZID=America/New_York:20241012T100000
DTSTAMP:20260404T104835
CREATED:20240904T175745Z
LAST-MODIFIED:20241015T150924Z
UID:2350-1728723600-1728727200@www.nfnortheast.org
SUMMARY:NF Charla de Café - Octubre
DESCRIPTION:¡Únase a nosotros en este chat comunitario para hispanohablantes realizado completamente en español! \n¡Los pacientes de NF y sus familiares están invitados a unirse a nosotros el sábado 12 de octubre por la mañana a las 9 a.m. para una charla de café virtual en español para crear comunidad! Estos chats son oportunidades fantásticas para conocer a otras personas afectadas por NF y tener conversaciones informales sobre las preocupaciones y preguntas del díaa día que puedan surgir. ¡Esperamos que puedas unirte a nosotros! \nRegístrate Aquí \n*Después de registrarse\, recibirá un correo electrónico de confirmación con información sobre cómo unirse a la reunión
URL:https://www.nfnortheast.org/event/nf-community-chat-octubre/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/09/October-24-SPANISH.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241013T073000
DTEND;TZID=America/New_York:20241013T130000
DTSTAMP:20260404T104835
CREATED:20240619T221902Z
LAST-MODIFIED:20241015T150927Z
UID:2198-1728804600-1728824400@www.nfnortheast.org
SUMMARY:2024 Amica Newport Marathon
DESCRIPTION:We’re so excited to offer a limited number of bibs for the 2024 Amica Newport Marathon in Newport\, Rhode Island! Join us on Sunday\, October 13th for a lovely fall running event on the northeast shoreline. Our bib offerings include the full marathon\, the half marathon\, OR virtual participation in either event—with a fundraising minimum of $500\, which includes your race registration fee! You’ll also have the chance to design your own personalized fundraising page to help motivate donors! \nRegister Here \n*Use above link to sign up with Team NF Northeast for no registration fee. Once registered\, a NF Northeast staff member will reach out with further instruction on setting up your fundraising page. \nNF Northeast offers coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Newport Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running\, nutrition\, fundraising\, and more! \nBib numbers are extremely limited\, so act fast to claim your spot for this annual fall classic race! Half and full marathon are USATF-certified. 
URL:https://www.nfnortheast.org/event/2024-amica-newport-marathon/
LOCATION:Easton’s Beach\, 175 Memorial Blvd\, Newport\, RI\, 02840\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/Newport-Marathon.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241014T190000
DTEND;TZID=America/New_York:20241014T200000
DTSTAMP:20260404T104835
CREATED:20240821T125419Z
LAST-MODIFIED:20241015T150931Z
UID:2301-1728932400-1728936000@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #3
DESCRIPTION:Please join us for our third and final session of our fall Young Adult Empowerment series. The focus will be identifying hurdles of living with a chronic medical condition and establishing tools to help you achieve your goals. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions. \n\n\n\n\n\nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-3/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T121500
DTEND;TZID=America/New_York:20241015T131500
DTSTAMP:20260404T104835
CREATED:20240724T140258Z
LAST-MODIFIED:20241022T150505Z
UID:2272-1728994500-1728998100@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Amanda Bergner
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the fourth session of our Fall 2024 Tuesday Takeaways series\, we welcome NF/SWN expert and genetic counselor\, Amanda Bergner\, to talk about various aspects of family planning across the lifespan for people with NF or schwannomatosis and their loved ones. Amanda will provide an overview of recent literature on topics such as birth control\, dating and disclosure to others\, considerations in pregnancy\, and options for genetic testing including preimplantation genetic testing (PGT). Bring your questions\, we’ll have time for discussion afterwards! \nRegister Here \n*Please note this Tuesday Takeaways session begins at 12:15PM\, 15 minutes later than usual \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/October-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241029T180000
DTEND;TZID=America/New_York:20241029T203000
DTSTAMP:20260404T104835
CREATED:20240724T193158Z
LAST-MODIFIED:20241030T001909Z
UID:2277-1730224800-1730233800@www.nfnortheast.org
SUMMARY:Hike for NF: Never Stop Climbing - Halloween Hike
DESCRIPTION:**This hike replaces the Harvest Super Moon Hike. The date was changed due to the threat of mosquito borne illness in the area.** \nWe’re bringing back Hike for NF: Never Stop Climbing for another year—but this time with a spooky twist! \nJoin us the evening of Tuesday\, October 29th for our third annual fundraising hike\, this time with a fun-filled Halloween theme. Hikers will experience the sounds and sights of Horn Pond in Woburn as the sun goes down\, using their heightened senses to connect with the nature around them. The hike is a flat\, 2-mile loop around the pond\, with an optional climb for a rewarding view of the Boston skyline at the end! Meet time is 6pm – the hike will begin promptly at 6:15pm. Costumes and festive Halloween attire are encouraged! After the hike\, head over to Lord Hobo Brewery in Woburn for a Halloween trivia session. \nRegistration:Adults – $30Children – $15 \nRegister \nThere is no minimum fundraising amount. However\, we are offering incentives\, should you wish to fundraise. All registration fees must be paid in advance to secure your spot to hike. \n\nFundraise $100 to select any NF merchandise\nFundraise $250 and you will receive a NF cooler or crossbody bag\nFundraise $500 and you will receive a bluetooth speaker and earbud kit\n\nContact info@nfnortheast.org or 781-272-9936 for more information! \nWhen life gives you mountains\, put on your boots and hike!
URL:https://www.nfnortheast.org/event/hike-for-nf-never-stop-climbing-halloween-hike/
LOCATION:Horn Pond\, 93 Lake Avenue\, Woburn\, 01801\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/Hike-Banner-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241105T120000
DTEND;TZID=America/New_York:20241105T130000
DTSTAMP:20260404T104835
CREATED:20241016T184432Z
LAST-MODIFIED:20241105T202511Z
UID:2392-1730808000-1730811600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #5 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our fifth session of our Fall 2024 series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you interested in learning helpful techniques that will improve how you advocate for yourself? Join us for an information session where Mike will share tips and strategies on how to advocate for yourself at home\, work\, medical appointments and more. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December. Find our other sessions on our event calendar: nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-5-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/November-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241109T180000
DTEND;TZID=America/New_York:20241109T230000
DTSTAMP:20260404T104835
CREATED:20240524T164510Z
LAST-MODIFIED:20241119T153220Z
UID:2116-1731175200-1731193200@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are so excited to announce the 15th Annual Committed to Curing NF Fundraiser will take place on Saturday\, November 9th 2024! \nPlease join the Malerba family at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who are unable to join on this special night\, try your luck in one of the drawings and/or make a tax-deductible donation to NF Northeast! \nEvent Tickets: \nEvent Tickets — $50 each \nReserve of Table of Ten — $500  \nPurchase Tickets \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nMystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \nVIP EXPERIENCE DRAWING – $35 per ticket \nWatch the World Champion Boston Celtics (2/23/25) OR the Boston Bruins (1/25/25) from a private luxury suite for 21 people on Level 6 of TD Garden. This VIP suite offers your group a private\, comfortable atmosphere with fantastic views of the on-court action. The included 1K in-suite catering makes this a day to remember!! \nWinning Package Includes: \n\n\n\n21 suite tickets to a private luxury suite near center ice on Level 6\n2 VIP parking passes on Level 1 of the TD Garden Garage\nFood & Beverage package included worth $1K\nAccess to private BGS entrances with dedicated elevators that bring you straight from the parking garage or street level to your suite level\nEarly access to the arena\, starting 2 hours prior to the game\nA private common area for mingling plus a private restroom\nA dedicated suite attendant for your food & beverage needs. Various options for food and beverage add-ons are available for purchase.\nAccess to Society Provisions and Society Harborview Lounge\n\n\n\nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nNF Champion Donor – $1\,500 Donation \n  \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their seventeen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $950\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-3/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241116T120000
DTEND;TZID=America/New_York:20241116T150000
DTSTAMP:20260404T104835
CREATED:20241030T190939Z
LAST-MODIFIED:20241119T153224Z
UID:2413-1731758400-1731769200@www.nfnortheast.org
SUMMARY:Kendra Scott Gives Back Event with NF Northeast
DESCRIPTION:Join us at Kendra Scott’s Give Back Event to check two things off your list this holiday season—shopping for gifts and supporting a great cause! We’ve partnered with Kendra Scott to throw a Kendra Gives Back event during which 20% of purchases made in-store during the hosted event or digitally through kendrascott.com (using a custom code) will directly benefit NF Northeast! \nWe’re hosting these events in-store throughout the northeast on Saturday\, November 16th from 12pm – 3pm at the following locations: \n\nLegacy Place\, Dedham\, MA\nMarket Street\, Lynnfield\, MA\nGarden State Shopping Mall\, Paramus\, NJ\nSuburban Square\, Ardmore\, PA\n\nOr online from Saturday\, November 16th through Monday\, November 18th using the code: GIVEBACK-HVQZD \nShop Online \nWe hope you can shop with us in-store or online to shine bright and do good this holiday season!
URL:https://www.nfnortheast.org/event/kendra-scott-gives-back-event-with-nf-northeast/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/Kendra-Scott-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T190000
DTEND;TZID=America/New_York:20241119T200000
DTSTAMP:20260404T104835
CREATED:20240821T174118Z
LAST-MODIFIED:20241120T021538Z
UID:2325-1732042800-1732046400@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, November 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-nov24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/November-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T180000
DTEND;TZID=America/New_York:20241207T200000
DTSTAMP:20260404T104835
CREATED:20241127T000250Z
LAST-MODIFIED:20241210T160832Z
UID:2439-1733594400-1733601600@www.nfnortheast.org
SUMMARY:NF Family and Community Night: Hartford CT Area
DESCRIPTION:Calling all those who live near Hartford\, CT! Join us the evening of Saturday\, December 7th at Cheshire Craft Brewing for drinks and appetizers in a relaxed\, casual setting with other NF locals! This is a great chance to connect with other patients and families in the area and meet others who understand life with neurofibromatosis. We hope to see you there! \nRSVP to Sara-Jane at sjgriffin@nfnortheast.org or 781-272-9936 by 12/4/2024
URL:https://www.nfnortheast.org/event/nf-family-and-community-night-hartford-ct-area/
LOCATION:Cheshire Craft Brewing\, 125 Commerce Ct STE 7\, Cheshire\, CT\, 06410\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/11/Hartford-Family-Night-WEB.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241210T120000
DTEND;TZID=America/New_York:20241210T130000
DTSTAMP:20260404T104835
CREATED:20241030T003359Z
LAST-MODIFIED:20241210T185440Z
UID:2408-1733832000-1733835600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #6 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin us for our final session of 2024 to learn useful tips for having better conversations with your healthcare providers and care team. Mike Sager\, Patient Education Manager at Alexion Pharmaceuticals\, will show you how to use a Conversation Planning Worksheet to prepare for these discussions. You’ll leave knowing how to set goals for your interactions and how to make each conversation more effective! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-6-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/December-WEB-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241212T190000
DTEND;TZID=America/New_York:20241212T200000
DTSTAMP:20260404T104836
CREATED:20240821T175803Z
LAST-MODIFIED:20241217T194406Z
UID:2329-1734030000-1734033600@www.nfnortheast.org
SUMMARY:NF Holiday Community Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Thursday\, December 12th at 7pm for a virtual holiday chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise\, especially around the holiday season. \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-dec24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/December-24-holiday.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250118T090000
DTEND;TZID=America/New_York:20250118T100000
DTSTAMP:20260404T104836
CREATED:20250108T003242Z
LAST-MODIFIED:20250122T193023Z
UID:2478-1737190800-1737194400@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, January 18th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-jan25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/January-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250128T120000
DTEND;TZID=America/New_York:20250128T130000
DTSTAMP:20260404T104836
CREATED:20241127T015409Z
LAST-MODIFIED:20250128T181131Z
UID:2450-1738065600-1738069200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Mary-Frances Garber
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nReceiving a new diagnosis of neurofibromatosis (NF) or schwannomatosis (SWN) or managing a complication from NF/SWN can result in a range of emotions for any patient or caregiver. Learning to step forward into this new territory and manage these feelings can be challenging. Acknowledging that these feelings are to be expected and can be managed is the first step to building a successful life. Mary-Frances Garber is an expert genetic counselor who will shed light on the various emotions/concerns that many NF families experience and teach strategies for navigating them. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-maryfrances-garber/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/January-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T100000
DTEND;TZID=America/New_York:20250208T120000
DTSTAMP:20260404T104836
CREATED:20241210T200109Z
LAST-MODIFIED:20250211T163648Z
UID:2457-1739008800-1739016000@www.nfnortheast.org
SUMMARY:12th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 12th annual Cupid’s Chase 5K on Saturday\, February 8th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/18/2025 \nOnline registration ends on Thursday\, February 6th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from 4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \nRegistration by 2/6 at 12pm:  \nIndividuals – $40 \nDay of Registration: \nIndividuals – $45 \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-2025/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/12/WEB-Event-Page-Featured-Images.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250210T190000
DTEND;TZID=America/New_York:20250210T200000
DTSTAMP:20260404T104836
CREATED:20250108T003621Z
LAST-MODIFIED:20250211T163653Z
UID:2481-1739214000-1739217600@www.nfnortheast.org
SUMMARY:NF Community Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, February 10th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-feb25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/February-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T120000
DTEND;TZID=America/New_York:20250225T130000
DTSTAMP:20260404T104836
CREATED:20250218T163605Z
LAST-MODIFIED:20250225T173004Z
UID:2793-1740484800-1740488400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin us on Tuesday\, February 25th at 12pm as Mike Sager\, Patient Education Manager at Alexion Pharmaceuticals\, examines the triggers and symptoms of stress while living with NF. Managing neurofibromatosis (NF) can be complex\, and we will explore various stress management techniques geared toward promoting wellness! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-mike-sager/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/February-25-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T180000
DTEND;TZID=America/New_York:20250301T200000
DTSTAMP:20260404T104836
CREATED:20250225T110157Z
LAST-MODIFIED:20250304T190949Z
UID:2822-1740852000-1740859200@www.nfnortheast.org
SUMMARY:Hartford NF Meet Up
DESCRIPTION:Join NF Northeast for a free and fun Hartford NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Cheshire Craft Brewing! Food and drink will be available for purchase.  Bring the family – we hope to see you there! \nWhat: NF Northeast Hartford Family Night Meet Up \nWhen: Saturday\, March 1 @ 6PM \nWhere: Cheshire Craft Brewing – Cheshire\, CT \nQuestions?  Contact Sara-Jane Griffin.
URL:https://www.nfnortheast.org/event/hartford-nf-meet-up/
LOCATION:Cheshire Craft Brewing\, 125 Commerce Ct STE 7\, Cheshire\, CT\, 06410\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/HARTFORD.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250309T140000
DTEND;TZID=America/New_York:20250309T170000
DTSTAMP:20260404T104836
CREATED:20250224T180612Z
LAST-MODIFIED:20250311T152445Z
UID:2814-1741528800-1741539600@www.nfnortheast.org
SUMMARY:Western NY NF Meet Up
DESCRIPTION:Join NF Northeast for a WNY NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Resurgence Brewery in Buffalo\, NY! \nWhat: NF Northeast WNY Meet Up \nWhen: Sunday\, March 9 @ 2PM – 5PM \nWhere: Resurgence Brewery (55 Chicago Street\, Buffalo) \nQuestions?  Contact Anne Patterson
URL:https://www.nfnortheast.org/event/western-ny-nf-meet-up/
LOCATION:Resurgence Brewery\, 55 Chicago Street\, Buffalo\, NY\, 14204
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Buffalo-3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T120000
DTEND;TZID=America/New_York:20250311T130000
DTSTAMP:20260404T104836
CREATED:20250129T202836Z
LAST-MODIFIED:20250311T164816Z
UID:2703-1741694400-1741698000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Dr. Frank Buono
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nAre you interested in learning more about managing chronic pain? Many individuals who live with neurofibromatosis (NF) also live with chronic pain. Dr. Frank Buono\, a Research Scientist and Lecturer at the Yale School of Medicine\, will shed light on the different aspects of pain and strategies to help individuals cope with the challenges of pain management. Join us to learn more about the ‘I Can Cope NF’ App\, alternative pain management strategies\, the importance of self-advocacy\, and much more! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-frank-buono/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/March-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T190000
DTEND;TZID=America/New_York:20250311T200000
DTSTAMP:20260404T104836
CREATED:20250108T003926Z
LAST-MODIFIED:20250312T034725Z
UID:2484-1741719600-1741723200@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 11th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-march25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/March-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250322T140000
DTEND;TZID=America/New_York:20250322T170000
DTSTAMP:20260404T104836
CREATED:20250211T131951Z
LAST-MODIFIED:20250325T144152Z
UID:2763-1742652000-1742662800@www.nfnortheast.org
SUMMARY:NYC NF Meet Up
DESCRIPTION:Join NF Northeast for a NYC NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Clinton Hall on 51st Street. We hope to see you there! \nWhat: NF Northeast NYC Meet Up \nWhen: Saturday\, March 22 @ 2PM \nWhere: Clinton Hall (51st Street location) \nQuestions?  Contact Lauren Gilbert
URL:https://www.nfnortheast.org/event/nyc-nf-meet-up/
LOCATION:Clinton Hall\, 230 E. 51st St.\, New York\, NY\, 10022
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Greater-Boston-2-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250329T103000
DTEND;TZID=America/New_York:20250329T123000
DTSTAMP:20260404T104836
CREATED:20250130T030114Z
LAST-MODIFIED:20250402T173235Z
UID:2706-1743244200-1743251400@www.nfnortheast.org
SUMMARY:Support and Tools for NF1 Caregivers
DESCRIPTION:Join NF Northeast for an educational event designed to support and connect caregivers of individuals with neurofibromatosis type 1 (NF1). This seminar will provide valuable resources\, insights\, and a sense of community for those caring for loved ones with NF1. This workshop is designed for adult caregivers\, offering expert guidance and shared experiences to navigate the challenges of NF1 care. There will be a Q&A session where caregivers will have an opportunity to ask our speakers any questions they have. \nDate: Saturday\, March 29th\nTime: 10:30am – 12:30pm\nLocation: Katonah Village Library in Katonah\, NY (Westchester County) \nRegister Here \nSpeakers: \n\nGurcharanjeet Kaur\, MD – Pediatric Neurology\, Columbia University Irving Medical Center\nAmanda L. Bergner\, MS\, LCGC – Genetic Counseling\, Columbia University Irving Medical Center\nJeffrey Malone\, LMHC – Mental Health Counselor\n\nFor caregivers attending with children\, an onsite activity will be available for kids ages 6-11. \nAdvance registration is encouraged\, but walk-ins are welcome as space allows. \nThank you to our sponsor:
URL:https://www.nfnortheast.org/event/support-and-tools-for-nf1-caregivers/
LOCATION:Katonah Village Library\, 26 Bedford Rd\, Katonah\, NY\, 10536\, United States
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/NF1-Caregiver_WEB.png
ORGANIZER;CN="Allison D%E2%80%99Ottavio":MAILTO:adottavio@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250405T100000
DTEND;TZID=America/New_York:20250405T140000
DTSTAMP:20260404T104836
CREATED:20250306T224313Z
LAST-MODIFIED:20250408T154002Z
UID:2840-1743847200-1743861600@www.nfnortheast.org
SUMMARY:Neurofibromatosis Educational Symposium
DESCRIPTION:Join us for the Neurofibromatosis Educational Symposium on Saturday\, April 5th\, from 10:00 AM to 2:00 PM in Buffalo\, NY. Hosted by John R. Oishei Children’s Hospital\, Roswell Park Cancer Institute\, and UBMD Pediatrics\, this event will provide valuable insights into neurofibromatosis\, featuring expert speakers and discussions. \n📍 Location: Conventus\, Alford Auditorium (2nd Floor)\, 1001 Main Street\, Buffalo\, NY 14203 \nDon’t miss this opportunity to learn\, connect\, and engage with professionals and individuals affected by neurofibromatosis! \nRegister Here
URL:https://www.nfnortheast.org/event/neurofibromatosis-educational-symposium/
LOCATION:Conventus\, Alford Auditorium (2nd Floor)\,1001 Main Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/03/Screenshot-2025-03-06-at-17-41-08-Neurofibromatosis-Educational-Symposium-Tickets-Sat-Apr-5-2025-at-10-00-AM-Eventbrite.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250422T120000
DTEND;TZID=America/New_York:20250422T130000
DTSTAMP:20260404T104836
CREATED:20250402T193333Z
LAST-MODIFIED:20250423T164223Z
UID:2931-1745323200-1745326800@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session with Mike Sager: Advocating for Your Child
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the third session of our Spring 2025 Tuesday Takeaways series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will share helpful resources and strategies to advocate for those we care for while engaging with their medical team and beyond. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-mike-sager-2/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/04/April-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T090000
DTEND;TZID=America/New_York:20250426T100000
DTSTAMP:20260404T104836
CREATED:20250108T004146Z
LAST-MODIFIED:20250429T143011Z
UID:2487-1745658000-1745661600@www.nfnortheast.org
SUMMARY:NF Community Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 26th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-april25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/April-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250510T110000
DTEND;TZID=America/New_York:20250510T170000
DTSTAMP:20260404T104836
CREATED:20250307T001803Z
LAST-MODIFIED:20250513T173530Z
UID:2854-1746874800-1746896400@www.nfnortheast.org
SUMMARY:2025 Patient and Family Neurofibromatosis and Schwannomatosis Symposium
DESCRIPTION:Join us on Saturday\, May 10th\, 2025\, from 11:00 AM to 5:00 PM for the 2025 Patient and Family Neurofibromatosis & Schwannomatosis Symposium in Boston\, MA. Hosted by Massachusetts General Hospital in collaboration with Boston Children’s Hospital’s Neurofibromatosis Program\, this event will feature expert discussions\, the latest research updates\, and resources for patients and families affected by neurofibromatosis and schwannomatosis. \nLocation: Simches Research Center\, MGH\, Boston\, MA\nParking: Charles River Park Garage\, 207 Cambridge Street\, Boston\, MA 02114 \nDon’t miss this chance to learn from experts\, connect with the community\, and access valuable resources! \nRegister Here
URL:https://www.nfnortheast.org/event/2025-patient-and-family-neurofibromatosis-and-schwannomatosis-symposium/
LOCATION:Simches Research Center\, 185 Cambridge Street\, Boston\, MA\, 02114\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/03/Screenshot-2025-03-06-at-19-09-23-2025-Patient-and-Family-Neurofibromatosis-and-Schwannomatosis-Symposium-Tickets-Sat-May-10-2025-at-11-00-AM-Eventbrite.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250514T163000
DTEND;TZID=America/New_York:20250514T193000
DTSTAMP:20260404T104836
CREATED:20250205T143406Z
LAST-MODIFIED:20250520T144310Z
UID:2155-1747240200-1747251000@www.nfnortheast.org
SUMMARY:A Reason for 'Ritas: A Charitable Evening to Benefit NF Northeast
DESCRIPTION:Join us to celebrate NF Northeast with good food\, better drinks\, and the best people at Margaritaville Boston on Wednesday\, May 14! We’ll be hosting an unforgettable tropical evening at Margaritaville Boston\, located in the Faneuil Hall Marketplace in downtown Boston\, with appetizers\, beer & wine\, and lots of margaritas. \nPurchase Event Tickets \nDon’t miss out on our luxury trip auction\, where we’ll be awarding the highest bidder with a stunning 13-day river cruise on the Seine for two! This two-week long cruise from Paris to Normandy includes airfare from Boston\, MA with departure on August 4\, 2025 (major thanks to Grand Circle Travel for their generous trip donation). You can place your bids in advance and of course\, join the live action at the event. Learn more about this exciting auction item HERE.  Place your bid from advance (or afar) through our auction website below. \nLuxury Trip Auction Details / Place Your Bid \nThis event is open to everyone\, so gather your friends\, don your best tropical attire\, and escape into the island vibes in support of NF Northeast 🌴🌺🍹 \n  \nThank you to our sponsors:
URL:https://www.nfnortheast.org/event/a-reason-for-ritas-a-celebration-of-nf-northeast-at-margaritaville/
LOCATION:Margaritaville Boston\, 399-400 Faneuil Hall Marketplace\, Faneuil Hall Sq\, Boston\, MA\, 02109\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/Reason-for-Ritas.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250520T120000
DTEND;TZID=America/New_York:20250520T130000
DTSTAMP:20260404T104836
CREATED:20250513T204252Z
LAST-MODIFIED:20250520T231955Z
UID:3001-1747742400-1747746000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session: Spotlight on NF Clinics in the Northeast
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin us during NF Awareness Month to learn about the NF centers of excellence in our region. In addition to general information about the NF clinics and providers available throughout the northeast\, NF providers from Columbia University Irving Medical Center (CUIMC) and the UPMC Children’s Hospital of Pittsburgh NF clinics will share details about their clinical teams and NF programs. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/spotlight-nf-clinics-northeast/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/05/May-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
END:VCALENDAR